| Initiative |
Organisation |
Category |
Level |
Type |
Contacts |
| #ILoveMyBrain |
European Brain Council (EBC) |
General Research |
|
|
|
|
#ILoveMyBrain -
European Brain Council (EBC)
The #ILoveMyBrain logo as a communication tool for promoting and connecting all the work being done to promote brain health and prevent and treat brain disorders in Europe. Different organisations, researchers, patients and carers are working on different conditions – Stroke, Multiple Sclerosis, Traumatic Brain Injury, Epilepsy, Mental Illness are only a few examples. We believe that by bringing together the very diverse activities which are all considered brain disorders, we can all benefit. Using a common logo, which is repeatedly seen in public and in the media, will help to gain more attention for brain disorders from EU policy makers, and ensure that more resources are channeled towards research on the brain and for patients of brain disorders.
|
|
|
|
|
|
|
| AcademyHealth Jobs |
Academy Health |
General Research |
National |
Directory |
|
|
AcademyHealth Jobs -
Academy Health
|
|
|
|
|
|
|
| AcademyHealth Programs |
Academy Health |
General Research |
National |
Directory |
|
|
AcademyHealth Programs -
Academy Health
AcademyHealth programs are led by our expert staff, supported by funding from a variety of partners, and all aimed at improving health and the health system. An alphabetical list of both past and current activities is below. Efforts include learning, translation and dissemination, technical assistance, professional services, as well as stakeholder engagement and community building.
|
|
|
|
|
|
|
| AcademyHealth Student Chapters |
Academy Health |
General Research |
National |
|
|
|
AcademyHealth Student Chapters -
Academy Health
AcademyHealth supports student chapters to enhance the learning and professional development experience for students in health services research and health policy. AcademyHealth offers benefits to student chapter members including discounts on event registration, access to career resources, scholarship offerings, and networking and mentoring opportunities. Initiating a student chapter at an accredited college or university is free. AcademyHealth provides a portfolio of information, events, training opportunities, and forms that are useful in starting and maintaining a chapter. AcademyHealth provides support to student chapters in instituting programs and projects of interest. Utilize the following resources to enhance your experience.
|
|
|
|
|
|
|
| Adapting Open Dialogue Project |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Recovery Services |
|
|
Adapting Open Dialogue Project -
The Foundation for Excellence in Mental Health Care
Adapting Open Dialogue Project is a recovery-focused early psychosis model imported from Finland with 30 years of research behind it It is an innovative, recovery-oriented, clinical intervention that has been demonstrated to help individuals in acute psychiatric crises to find recovery. There are currently three pilot projects underway in Massachusetts and Atlanta, Georgia, as well as the Institute for Dialogic Practice in Haydenville, MA which runs a two-year training program in dialogical practices and the open dialogue approach. The research is a clinical manual with dialogical practice and organizational system-level fidelity instruments that will allow for evidence-based replication of the model throughout the nation.
|
|
|
|
|
|
|
| Affect Science in Medicine |
American Psychosomatic Society |
General Research |
National |
Collaboration & Networking |
|
|
Affect Science in Medicine -
American Psychosomatic Society
Affect Science in Medicine is an initiative that seeks to promote scientific excellence in an area considered foundational for psychosomatic medicine while further enhancing the clinical relevance of our research. Six topic areas have been identified:
- Early life adversity and emotions
- Physiological manifestations of emotions
- Implicit measures of affect
- Bidirectional brain-body interactions
- Maladaptive emotion regulation
- Emotion in social relationships
A major goal of this SIG is to generate a separate white paper on each topic. Each white paper will take stock of current knowledge and methods and address the research agenda for the foreseeable future regarding both basic science and clinical applications.
|
|
|
|
|
|
|
| Bill Anthony General Research Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Fund |
|
|
Bill Anthony General Research Fund -
The Foundation for Excellence in Mental Health Care
Bill Anthony General Research Fund Early is an early psychosis treatment program. This is a key component of making recovery the new mainstream, and it is just one of the research areas.
|
|
|
|
|
|
|
| Brain Diseases From A-Z |
America Brain Foundation |
General Research |
National |
|
|
|
Brain Diseases From A-Z -
America Brain Foundation
|
|
|
|
|
|
|
| Campaign for Mental Health |
The Royal Mental Health Care |
General Research |
State |
|
|
|
Campaign for Mental Health -
The Royal Mental Health Care
Campaign for Mental Health is supporting research, care, education and advocacy initiatives. Campaign priorities include:
- World-class Brain Imaging: one of a few PET-fMRI machines in the world for neuroscientists to increase their ability to identify the causes of a Mental Illness and define more effective treatment. This machine will be the only one of its kind in North America dedicated to Mental Health and brain research and it will open the door to a new era of success in Mental Health care.
- Depression Research Centre: a Centre of Excellence dedicated to the discovery of new treatments for depression, and to understanding the links between depression and other illnesses.
- A Revolution in Mental Health Research and Care​: PET-fMRI brain imaging is a holistic solution that will allow our research scientists to look at the brain at a molecular level, seeing in real-time how treatments are affecting the brain. It will give us a deeper understanding of why the brain isn’t functioning properly, and lead to effective diagnoses and treatments.
|
|
|
|
|
|
|
| Centre for Public Engagement (CPE) |
Service User Research Enterprise (SURE) |
General Research |
Online |
|
|
|
Centre for Public Engagement (CPE) -
Service User Research Enterprise (SURE)
Centre for Public Engagement (CPE) at Kingston and St George’s University of London: The Dragon Café in South London and Maudsley clinical records. The Dragon Café, a user led space in Southwark is mentioned over 2,000 times within South London and Maudsley clinical records. This project seeks to explore how the Dragon Café is perceived by SLaM staff and service users.
|
|
|
|
|
|
|
| Community Mental Health Drug and Alcohol Research Network |
Mental Health Commission of New South Wales |
General Research |
State |
|
|
|
Community Mental Health Drug and Alcohol Research Network -
Mental Health Commission of New South Wales
The Community Mental Health Drug and Alcohol Research Network (CMHDARN) is a NSW-based partnership project between the Mental Health Coordinating Council (MHCC), the Network of Alcohol and Other Drugs Agencies (NADA), and the Mental Health Commission of NSW. The network was established in 2010 to link people and organisations in the community mental health and alcohol and other drugs sectors with opportunities to understand and undertake research. This longstanding project facilitates a culture of research by providing opportunities and support for collaboration between community organisations and research bodies, including universities and research institutes. CMHDARN primarily aims to:
- Improve the quality of service delivery and the outcomes for consumers of community-managed services
- Promote increased awareness and understanding of co-existing mental health and alcohol and other drug issues.
In line with best practice in both the mental health and alcohol and other drug sectors, CMHDARN is committed to keeping lived experience at the forefront of its work by promoting lived experience leadership in research.
CMHDARN supports non-government and community-managed organisations to conduct research activities in order to contribute to the wider knowledge base and improve service delivery practice. Members of CMHDARN play a crucial role in increasing the involvement of the community mental health and alcohol and other drug sectors in practice-based research, promoting the value of research and the use of research evidence in practice. To build the research capacity of the mental health and alcohol and other drugs sectors, CMHDARN shares information and engages with members via its e-communications, website, workshops and webinars, and other activities and resources.
|
|
|
|
|
|
|
| Create |
Australiasia Society for Behavioral Health and Medicine |
General Research |
|
|
|
|
Create -
Australiasia Society for Behavioral Health and Medicine
CREATE is a network of early career researchers. Every year we organise interactive workshops prior to the EHPS conference. Prominent experts within the field of health psychology are invited to lead these workshops, with an overall aim of enhancing the knowledge and skills of participants. In addition, CREATE organises the Meet the Expert sessions, where researchers can connect with experts in their field.
|
|
|
|
|
|
|
| Developmental Origins of Health and Disease |
American Psychosomatic Society |
General Research |
National |
Early Intervention |
|
|
Developmental Origins of Health and Disease -
American Psychosomatic Society
The Developmental Origins of Health and Disease Special Interest Group aims for an increasing number of researchers to present their work on early life factors affecting developmental and health outcomes. APS members are in a unique position to contribute to this area of research both by virtue of their overall guiding interest in health outcomes and in their diverse set of skills and interests related to the role of early adversity in health and disease outcomes.
|
|
|
|
|
|
|
| Empathic Therapy Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Fund |
|
|
Empathic Therapy Fund -
The Foundation for Excellence in Mental Health Care
The Center for the Study of Empathic Therapy, Education & Living supports research, education, publications and conferences that foster caring, respectful human relationships. It then draws upon scientific integrity, personal responsibility, honesty, and respect for the individual. We value the integrity and inviolability of each person’s brain, mind, and spirit, and embrace the ideal of “First, do no harm!” Based on science and empathy, the best approaches are wholly voluntary and entirely free of psychiatric diagnoses and drugs. As pioneers in the emerging field of empathic therapy, we encourage all human services that are rooted in mutual respect and equality between those who seek help and those who wish to provide it.
|
|
|
|
|
|
|
| Employee Support |
7 Cups of Tea |
General Research |
Online |
Employment |
|
|
Employee Support -
7 Cups of Tea
7 Cups provides emotional support for workforces through confidential conversations with trained active listeners and engaging activities, 7 Cups of Tea helps your employees and their families excel and overcome challenges.
- Supports your employees when they need it most—anonymously, confidentially, and conveniently
- Provides on-demand emotional support via iPhone and Android Apps & Web
- Reduces employee attrition, saving your organization significant costs
- Decreases absenteeism by better supporting employees
- Offers a real, meaningful & valuable employee benefit
- Easy to implement with your existing website
- Organization-branded options available
|
|
|
|
|
|
|
| European Neuroscience Conference by Doctoral Students (ENCODS) |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
European Neuroscience Conference by Doctoral Students (ENCODS) -
Federation of European Neuroscience Societies (FENS)
ENCODS is a European training network for PhD students in neurosciences. ENCODS holds annually cross-disciplinary conferences to prepare early neuroscientists to meet the challenges in the field of neurosciences for today and the future.
|
|
|
|
|
|
|
| Explorations of User-led Research: Impact, Knowledge, and Historical Approaches (EURIKHA) |
Service User Research Enterprise (SURE) |
General Research |
Online |
|
|
|
Explorations of User-led Research: Impact, Knowledge, and Historical Approaches (EURIKHA) -
Service User Research Enterprise (SURE)
Explorations of User-led Research: Impact, Knowledge, and Historical Approaches (EURIKHA) is mapping the history of research, advocacy, and activism by persons with psychosocial disabilities, mental health service users, and survivors. What we understand as ‘mental ill-health’ is usually defined by authority figures such as doctors, psychiatrists/psychologists, priests, lawyers and governments. For many years, however, people who have been deemed ‘mad’ or ‘mentally ill’ by society and psychiatry – variedly known around the world as users, survivors, consumers, clients, patients, persons with psychosocial disabilities, etc. – have been involved in challenging these understandings and creating new knowledge from their perspectives. This knowledge has taken different forms and histories influenced by the contexts within which they emerged.
Mental health service users, survivors, and persons with psychosocial disabilities have created knowledge through rights-based activism, community organising, advocacy, peer support, the arts, user involvement in research, and in some parts of the world through the developments of user/survivor-led research. Some work focuses not only on mental health, but also on intersecting issues such as disability, poverty and sustainable living, racism, gender-based violence, and other forms of marginalisation and oppression.
EURIKHA is led by Professor Diana Rose and is based at the Service User Research Enterprise (SURE) at the Institute of Psychiatry, Psychology and Neuroscience, King’s College London. A supplementary project, titled Still We Rise, will focus specifically on the history of activism, advocacy and research by African, African Caribbean, and Asian mental health service users and survivors in the UK. This project aims to work against the marginalisation and/or mythologisation of minority histories into the terms of a mainstream world view by focusing on the intersectional nature of challenging both the mental health system and institutional and structural racism within broader society.
|
|
|
|
|
|
|
| Exploring the potential of civic engagement to strengthen mental health systems in Indonesia (IGNITE) |
Service User Research Enterprise (SURE) |
General Research |
Online |
|
|
|
Exploring the potential of civic engagement to strengthen mental health systems in Indonesia (IGNITE) -
Service User Research Enterprise (SURE)
IGNITE: Exploring the potential of civic engagement to strengthen mental health systems in Indonesia is a collaborative project with Jakarta, St Georges and Liverpool universities to investigate the possibilities of civic engagement, conceived in terms of rights, in Indonesia. The team worked with an NGO in Jakarta and also two rural sites. The idea was well received in the NGO but other issues took priority in rural areas and there was little interest in taking on board this notion. The project is in write-up stage. Professor Diana Rose was PI for King’s in this study.
|
|
|
|
|
|
|
| FENS Neuroscience Schools |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
FENS Neuroscience Schools -
Federation of European Neuroscience Societies (FENS)
FENS Neuroscience Schools support education and training of young neuroscientists. FENS offers a recurrent programme of state-of-the-art European schools on timely topics in neuroscience.
|
|
|
|
|
|
|
| FENS-Kavli Network of Excellence |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
FENS-Kavli Network of Excellence -
Federation of European Neuroscience Societies (FENS)
The FENS-Kavli Network of Excellence embeds thirty European Neuroscientists representing their peers in all fields of neuroscience research. In collaboration with the Kavli Foundation, the Federation of European Neuroscience Societies (FENS) established a high visibility multidisciplinary network of early to midcareer European neuroscientists. FKNE aim to improve Neuroscience in Europe and beyond through providing opportunities for young scientists, influencing science policy, and facilitating the exchange between science and society.
|
|
|
|
|
|
|
| Good Off-Label Use Practice (GOLUP) |
European Brain Council (EBC) |
General Research |
|
|
|
|
Good Off-Label Use Practice (GOLUP) -
European Brain Council (EBC)
GOLUP is the adoption of EU guidelines on off-label use of medicines, a policy option presented in the European Commission`s Study on off-label use of medicinal products in the European Union published in February 2017. Off-label use is the practice of using a medicine outside its authorised indication. This is often necessary in areas of unmet medical needs but also poses challenges in terms of patient safety. The manner in which member states deal with off-label use is currently not harmonized in the EU.
|
|
|
|
|
|
|
| Hearing Voices Research and Development Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Fund |
|
|
Hearing Voices Research and Development Fund -
The Foundation for Excellence in Mental Health Care
The Hearing Voices Fund research and development team’s long-planned project to bring Hearing Voices peer support groups to hundreds of communities across the United States is in full swing, sending trainers into the field to equip support group facilitators in five regions of the U.S. and fostering the creation of a stronger regional and local infrastructure over the long term. Thanks to a generous donor, all three phases of the project are now fully funded. Phase Two will expand the network of hearing voices peer-support groups to remaining unserved regions of the United States and build sustaining regional links that will allow the network to thrive and develop over the long term; Phase Three will enable further research to identify ways to optimize the effectiveness of such groups. But this is just the start to realizing our vision of a Hearing Voices group in every neighborhood in America. Communities interested in sponsoring a training in their area are encouraged to contact Caroline White, Training Coordinator, at 413.539.5941 x316 or Caroline@westernmassrlc.org to learn about costs and training requirements.
Excellence’s Hearing Voices Fund supports the development of a network of hearing voices peer-support groups across the United States. These groups offer a safe place for people to share their experiences of voices, visions, tactile sensations, unshared beliefs, and other distressing experiences. By meeting together to help and support one another, to exchange information, and most importantly to learn from each other’s coping strategies, these groups can transform the lives even of people who have suffered for many years. As a consequence, some people stop hearing voices entirely, once they understand the symbolic significance they have been serving (e.g., to preserve a memory of trauma that has yet to be worked through). Others learn to accept and “live with voices” in ways that enable them to regain more control over their lives.
The Hearing Voices Fund is supporting a systematic program of training intended to create a network of hearing voices peer-support groups in five key regions of the U.S. Participants are being selected using a rigorous model in which mental health professionals and voice hearers collaborate in an intensive shared learning experience that equips them to apply HVN’s concepts and methods to the creation of positive alternatives for people diagnosed with psychosis. An equally important part of the Hearing Voices Fund’s mission is to conduct research that can systematically analyze the mechanisms by which these peer-support groups work. Personal testimonies and some initial phenomenological studies of people’s experiences in groups suggest promising avenues for more intensive analysis, and the Fund’s research arm seeks to advance this work across the U.S.
|
|
|
|
|
|
|
| Medical Support |
Anxiety NZ |
General Research |
National |
|
|
|
Medical Support -
Anxiety NZ
|
|
|
|
|
|
|
| Mental Health Evidence and Research (MER) |
The World Health Organisation (WHO) - Mental Health |
General Research |
|
|
|
|
Mental Health Evidence and Research (MER) -
The World Health Organisation (WHO) - Mental Health
Evidence and Research team (MER) at WHO is deeply committed to closing the gap between what is needed and what is currently available to reduce the burden of mental disorders worldwide and to promote mental health. The MER team transforms this objective into action through the following core projects that aim to increase the information and evidence base on mental health. Core projects include
- Mental Health Atlas Project : collecting and disseminating data on mental health resources such as policies, plans, financing, care delivery, human resources, medicines, and information systems in the world. The project started in 2001 and the data was updated in 2005, 2011 and 2014.
- The World Health Organization Assessment Instrument for Mental Health Systems (WHO-AIMS) is a tool for collecting essential information on the mental health system of a country or region. The goal of collecting this information is to improve mental health systems and to provide a baseline for monitoring the change.
- Mental Health in Emergencies: work on mental health in emergencies is any population exposed to extreme stressors, such as refugees, internally displaced persons, disaster survivors, and terrorism, or war-exposed populations.
|
|
|
|
|
|
|
| MINDS Research |
The Minds Foundation |
General Research |
Global |
|
|
|
MINDS Research -
The Minds Foundation
MINDS programs are based upon extensive research and data collection. A needs assessment is at the foundation of our program design process. Continuing monitoring and evaluation of our programs once they are implemented is essential to improving and providing communities what they truly need.
|
|
|
|
|
|
|
| National Mental Health Research Strategy |
National Mental Health Commission |
General Research |
National |
|
|
|
National Mental Health Research Strategy -
National Mental Health Commission
|
|
|
|
|
|
|
| Network of European Neuroscience Schools (NENS) |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
Network of European Neuroscience Schools (NENS) -
Federation of European Neuroscience Societies (FENS)
Network of European Neuroscience Schools (NENS) is a representation of over 160 graduate schools and programmes across approximately 30 European countries that offer MSc, PhD and MD-PhD degrees in neuroscience.. NENS possesses the most comprehensive online source of information on neuroscience graduate education, schools and programmes in Europe, displayed by the NENS Programme Directory.
|
|
|
|
|
|
|
| Not Myself Today |
European Brain Council (EBC) |
General Research |
|
|
|
|
Not Myself Today -
European Brain Council (EBC)
Not Myself Today is an annual workplace mental health initiative that equips senior leaders, human resources, managers and employees with activities, tools and resources focused on increasing awareness and knowledge of mental health, reducing stigma, and fostering safe, open and supportive workplace environments. Not Myself Today is based on a shared insight – the feeling of not being one’s self and that everyone can relate to – that connects people to the topic of mental health and helps build empathy for those who may be facing challenges.
Not Myself Today was introduced to workplaces in Canada in 2013 to encourage employers and employees to transform mental health at work, and will now be piloted, and if successful, rolled out across Europe. Through this initiative, European companies and organizations will receive comprehensive resources and tools to organize events and activities that engage employees and aims to reduce stigma and create cultures of acceptance and support for mental health and for those who are facing mental illness.
|
|
|
|
|
|
|
| Nutrition and Mental Health Research Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Fund |
|
|
Nutrition and Mental Health Research Fund -
The Foundation for Excellence in Mental Health Care
The Nutrition and Mental Health Research Fund aims to strengthen knowledge and evidence for the use of multi-nutrient formulas to ease withdrawal from psychiatric medication and provide alternatives to beginning pharmacotherapy. The Nutrition and Mental Health Research Fund will support research and education on the ability of multi-nutrient treatments to reverse and prevent the onset of psychiatric symptoms. It seeks to raise an initial $1,000,000 for its first round of research grants. Fund donations will support additional research on these multi-nutrient treatments. Although the the evidence is strong that dietary habits are associated with psychiatric symptoms, there are two areas in particular needing additional research:
- The ability of multi-nutrient treatments to reverse psychiatric symptoms, and
- Evaluation of the use of nutritional interventions to prevent psychiatric symptoms.
Once further research data has accumulated, the fund will support knowledge translation and dissemination to professionals and the public.
|
|
|
|
|
|
|
| Patient and public involvement in the ARC South London |
Service User Research Enterprise (SURE) |
General Research |
Online |
|
|
|
Patient and public involvement in the ARC South London -
Service User Research Enterprise (SURE)
The Applied Research Collaboration (ARC) South London, launching in October 2019, is a five year cycle of research and partnership activities funded by the National Institute of Health Research. The ARC South London aims to embed partnerships between universities, NHS trusts, charities and local service users and carers, in order to improve health and social care service provision in South London.
The Patient and Public Involvement Research theme of the ARC is a collaboration between SURE and the Centre for Public Engagement (CPE) at Kingston and St George’s University of London which will be undertaking research aimed at understanding and improving patient and public involvement (PPI) in different institutional contexts including research organisations, health services and commissioning. SURE staff in collaboration with the Health Innovation Network will also be involved in setting up the ARC’s overall PPI strategy including extending engagement and collaboration with user led groups and organisations across South London. Project specifics and activity details will be added following the launch of the ARC South London.
|
|
|
|
|
|
|
| PROMISE |
Australiasia Society for Behavioral Health and Medicine |
General Research |
|
|
|
|
PROMISE -
Australiasia Society for Behavioral Health and Medicine
Promoting Research Opportunities, Mentoring and Innovations for Students and Early Career Members (PROMISE) is a group that was developed through ASBHM, where the executive committee felt it was important to support, help and guide Early Career and Postgraduate contingent that are members of ASBHM.PROMISE stands for. The main aim of PROMISE is to promote research opportunities, mentoring and education for students and early career members, throughout Australasia, who have an interest in behavioural health and medicine, specifically by:
- Organising subsidised workshops on topics of interest at the ASBHM annual conference.
- Organising a free mentoring session with experienced researchers at the ASBHM annual conference.
- Organising a fun social activity at the ASBHM conference, which will give all PROMISE members an opportunity to meet others and identify common research interests.
- Notifying members of other workshops and events (outside of the ASBHM conference) that could be of value for their career development.
- Notifying members of job opportunities for early career researchers.
|
|
|
|
|
|
|
| Reclaiming Childhood Program Development and Research Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
|
|
|
|
Reclaiming Childhood Program Development and Research Fund -
The Foundation for Excellence in Mental Health Care
The Reclaiming Childhood Program Development and Research Fund will support programs which help families move beyond the current pharmaceutically-focused model of mental health and apply more holistic approaches in their daily efforts to help social, emotional, and behaviorally-challenged children. Their mission is to help families move beyond the current pharmaceutically-focused model of mental health and better understand the need to apply more holistic approaches in their daily efforts to help social, emotional, and behaviorally-challenged children. One of the main goals is to dramatically slow down the trend of over diagnosing, labeling and medicating children in the name of mental health. We want to help adults, help kids — still in the prime of their critical development stages– live more “normal” childhoods and become great citizens.
|
|
|
|
|
|
|
| Research & Consulting |
mHub - The Mental Health Hub |
General Research |
National |
|
|
|
Research & Consulting -
mHub - The Mental Health Hub
mHub provide a range of implementation and consulting services in areas such as research, education, and innovative practical solutions relating to mental health and wellbeing. Many of the projects derive from the international network of mHub Global and our affiliates, particularly the Global Engagement Institute (GEI) and gHive. Occasionally, international or local institutions also contract us directly to carry out services.
If you are interested to partner with us, please contact us at info@mental-health-hub.org.
|
|
|
|
|
|
|
| RxISK.org Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Online |
Fund |
|
|
RxISK.org Fund -
The Foundation for Excellence in Mental Health Care
RxISK.org puts the power of the Internet to use in collecting data and related narratives of real-life experiences with medications. The RxISK Fund supports the collection, analysis and publishing of patient data and related narratives of experiences with medications to promote recovery and make medicines safer for all of us through the integration of the best research data with clinical expertise and patient values.
The website, www.RxISK.org, enables reporting of medication outcomes by those with lived experience. Its mobile site extends this capability to many handheld devices. These sites report the merits or drawbacks of treatments, testing and diagnoses. The RxISK Fund also offers expert assessments of new drugs by independent clinicians for licensed and unlicensed indications, analysis of consumer-reported data relative to medication outcomes, and educational resources about treatment risk and risk mitigation. It also supports these activities:
- Publishing of research results
- Lectures
- Analysis of political, sociological, legal and regulatory impacts on health
- Instruments to aid in determining the likely success or drawbacks of treatment programs and the quality of medical care
|
|
|
|
|
|
|
| Special Interest Groups (SIGs) |
Australiasia Society for Behavioral Health and Medicine |
General Research |
|
|
|
|
Special Interest Groups (SIGs) -
Australiasia Society for Behavioral Health and Medicine
ASBHM is considering the introduction of Special Interest Groups (SIGs) to provide forums for ASBHM members who have a shared interest in a particular topic. Potential SIGs could include areas such as translation and implementation research, disease prevention and health promotion, disease management and treatment, cancer, women’s health, physical activity and nutrition, etc. We are open to any suggestions for potential SIG areas. If SIGs are formed, the activities of the SIGs will be determined by the individual SIG members and leadership. To give you an idea of the potential benefits, these activities could include:
- Regular meetings/discussions
- Presentations/webinars
- Newsletters
- Mentoring arrangements for ECRs
- Sharing of data and relevant publications
- Writing joint publications or position statements
- Preparation/submission of symposia for conferences etc.
|
|
|
|
|
|
|
| Syllabi Catalog |
Academy Health |
General Research |
National |
Directory |
|
|
Syllabi Catalog -
Academy Health
The AcademyHealth Syllabi Catalog provides a detailed list of syllabi used in schools and universities that focus on related topics in Health Service Research.
|
|
|
|
|
|
|
| The AcademyHealth Professional Development Catalog |
Academy Health |
General Research |
National |
Directory |
|
|
The AcademyHealth Professional Development Catalog -
Academy Health
The AcademyHealth Professional Development Catalog provides a detailed list of upcoming virtual offerings including: webinars, Google Hangouts, and seminars led by experts in Health Service Research​
|
|
|
|
|
|
|
| The Adverse Childhood Experiences Prevention Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Fund |
|
|
The Adverse Childhood Experiences Prevention Fund -
The Foundation for Excellence in Mental Health Care
The Adverse Childhood Experiences Prevention Fund will assist programs dedicated to preventing the causes of Adverse Childhood Experiences that lead to mental health challenges and will partner with existing organizations to increase the availability of care for children that addresses trauma, builds resiliency and does not rely on prescription drugs.
The Adverse Childhood Experiences (ACE) Study is one of the largest investigations ever conducted to assess associations between childhood maltreatment and later-life health and well-being. The study is a collaboration between the Centers for Disease Control and Prevention and Kaiser Permanente’s Health Appraisal Clinic in San Diego. The ACE Study findings suggest that certain experiences are major risk factors for the leading causes of illness and death, including addiction, heart, lung and liver disease, depression and ongoing family dysfunction and abuse, as well as social, emotional and cognitive impairment that causes isolation and mental health challenges. There is a great wealth of untapped data and under-utilized knowledge that could help those with childhood trauma to find recovery and wellness.
|
|
|
|
|
|
|
| The American Brain Foundation’s Cure One, Cure Many Award |
America Brain Foundation |
General Research |
National |
|
|
|
The American Brain Foundation’s Cure One, Cure Many Award -
America Brain Foundation
The American Brain Foundation’s Cure One, Cure Many Award seeks to attract the best minds in brain disease research to advance research that addresses key knowledge gaps that cut across brain diseases. The award brings together funders to advance progress on large-scale, cross-cutting research topics.
|
|
|
|
|
|
|
| The American Brain Foundation’s Next Generation Research Grants |
America Brain Foundation |
General Research |
National |
|
|
|
The American Brain Foundation’s Next Generation Research Grants -
America Brain Foundation
The American Brain Foundation’s Next Generation Research Grants fund and support innovative investigations by the best and brightest early-career researchers. Funding research across a broad spectrum of the brain is our best hope for finding better treatments, prevention, and cures for brain diseases and disorders. With the support of our donors, we’re helping to launch long-term careers for the next generation of clinical neuroscience researchers so that one day we can all enjoy life without brain disease.
|
|
|
|
|
|
|
| The Brain Awareness Week (BAW) |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
The Brain Awareness Week (BAW) -
Federation of European Neuroscience Societies (FENS)
The Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research. The Brain Awareness Week (BAW) is an opportunity to let people know about the progress that are being done in brain research as well as progress in the diagnosis, treatment and prevention of disorders of the brain, such as Alzheimer's, Parkinson's, stroke, schizophrenia and depression.
|
|
|
|
|
|
|
| The CAJAL Advanced Neuroscience Training Programme |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
The CAJAL Advanced Neuroscience Training Programme -
Federation of European Neuroscience Societies (FENS)
The CAJAL Advanced Neuroscience Training Programme represents commitment by the five partner institutions, which offers state-of-the-art hands-on training courses in neuroscience. These include:
- FENS
- IBRO
- The Gatsby Charitable Foundation
- University of Bordeaux and
- The Champalimaud Foundation,
|
|
|
|
|
|
|
| The Committee on Animals in Research (CARE) |
Federation of European Neuroscience Societies (FENS) |
General Research |
|
|
|
|
The Committee on Animals in Research (CARE) -
Federation of European Neuroscience Societies (FENS)
The Committee on Animals in Research (CARE) advises FENS on the responsible use of animals in neuroscience research. It supports the development of resources on animals in research for FENS and promotes the public education in matters related to the use of animals in neuroscience. The Committee on Animals in Research (CARE) advises FENS on the responsible use of animals in neuroscience research. Click on 'more' to access the full list of CARE Members.
|
|
|
|
|
|
|
| The Division of Academics, Teachers and Researchers in Psychology |
The Psychological Society of Ireland (PSI) |
General Research |
National |
Special Interest Groups (SIGs) |
|
|
The Division of Academics, Teachers and Researchers in Psychology -
The Psychological Society of Ireland (PSI)
The Division of Academics, Teachers and Researchers in Psychology promotes best practice in teaching and research in psychology by providing a forum for the sharing of knowledge and expertise among psychologists working in research and/or teaching fields.
A
Contact the Committee:
|
|
|
|
|
|
|
| The Early Graduate Group |
The Psychological Society of Ireland (PSI) |
General Research |
National |
Special Interest Groups (SIGs) |
|
|
The Early Graduate Group -
The Psychological Society of Ireland (PSI)
The Early Graduate Group supports psychology graduates for the first ten years after they complete their undergraduate. Our aim is to help and support early career psychologists in their journey toward attaining their career goals.
|
|
|
|
|
|
|
| The evolution of Patient and Public Involvement in the Maudsley BR |
Service User Research Enterprise (SURE) |
General Research |
Online |
|
|
|
The evolution of Patient and Public Involvement in the Maudsley BR -
Service User Research Enterprise (SURE)
The evolution of Patient and Public Involvement in the Maudsley BR is an evaluation of the organisational embedding of PPI activities across the Maudsley Biomedical Research Centre over a 10 year period.
|
|
|
|
|
|
|
| The Global Mental Health Fund |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Fund |
|
|
The Global Mental Health Fund -
The Foundation for Excellence in Mental Health Care
The Global Mental Health Fund provides mentors and funding to health programs in low and middle-income countries to establish and assess psychiatric rehabilitation models that are tailored to the unique needs of each community.
Donations will provide grants to these countries to innovate and measure services and outcomes and will primarily impact people with significant mental health challenges. The work will be facilitated through personal contacts between clinical and program research grantees and Fund advisors and their partners from leading academic institutions in better resourced countries. Fund grants will yield program model descriptions, pilot data on clinical population, services and outcomes to aid in increasingly better quality, more efficient growth of rehabilitation services and infrastructure in underserved areas around the world.
The Global Mental Health Fund’s first grant was awarded to Padhar Hospital, a rural Lutheran multi-specialty mission hospital located in Betul District of Madhya Pradesh, roughly equidistant from Bhopal and Nagpur. It is currently running on a limited budget financed entirely by personal donations from well-wishers. The project activities include building awareness of mental health issues and epilepsy in the target community, door-to-door screening by field workers using a specially designed screening tool, weekly outreach clinics (on Wednesdays) by the team including the consultant psychiatrist in selected village settings, provision of free medications on site for patients with severe mental illnesses and epilepsy, referral of patients with less severe mental health issues to Padhar hospital for more pharmacological and/or psychotherapeutic interventions or consultations with other departments, fostering community re-integration of patients and their families in the field, facilitating practical community-based research to improve service provision, and a mechanism to follow up patients receiving medications in the field on a regular basis
|
|
|
|
|
|
|
| The Nathan S. Kline Institute for Psychiatric Research |
The New York State Office of Mental Health (OMH) |
General Research |
State |
Research |
|
|
The Nathan S. Kline Institute for Psychiatric Research -
The New York State Office of Mental Health (OMH)
The Nathan S. Kline Institute for Psychiatric Research investigates the causes, treatment, prevention, and rehabilitation of severe and persistent mental illnesses. Founded in 1952, NKI has earned a reputation for landmark contributions in the areas of psychopharmacological treatments for schizophrenia and major mood disorders, dementia research, clinical trials methodology, therapeutic drug monitoring, and the application of computer technology to mental health services. Their research encompasses understanding psychiatric disorders through studies in:
- Neurogenetics
- Neurochemistry
- Functional brain imaging across the lifespan
- Evaluating cognition deficits in schizophrenia
- Understanding the molecular and cellular basis of Alzheimer’s disease
- Early intervention for people at high risk; and
- Culturally competent care.
|
|
|
|
|
|
|
| The Royal's Brain Imaging Centre |
The Royal Mental Health Care |
General Research |
State |
Research |
|
|
The Royal's Brain Imaging Centre -
The Royal Mental Health Care
The Royal's Brain Imaging Centre is a state of the art research facility featuring a PET-MRI machine - the first of its kind in Canada solely dedicated to mental health and neuroscience research. The goal of their research is to find better ways to diagnose and treat mental illness.
|
|
|
|
|
|
|
| The Royal's Institute of Mental Health Research (IMHR) |
The Royal Mental Health Care |
General Research |
State |
Research |
|
|
The Royal's Institute of Mental Health Research (IMHR) -
The Royal Mental Health Care
The Royal's Institute of Mental Health Research (IMHR) affiliated with the University of Ottawa is currently conducting innovative research in the areas of mood disorders, anxiety disorders, schizophrenia, youth psychiatry, forensic psychiatry, sleep disorders and neuroelectrophysiology. Investigations in the use and efficacy of complementary and alternative medicine are also ongoing. As part of the IMHR's continued development, the integration of novel research platforms is being undertaken in the areas of Brain-imaging, Program Evaluation, Population and Community Health and Translational Neuroscience. Together, these platforms will support further growth, development of critical mass in key areas and ultimately, improvements in the delivery and effectiveness of clinical care. They develop leading-edge multidisciplinary research programs with the ultimate goal of fostering innovative ways of treating mental illness.
|
|
|
|
|
|
|
| The Special Interest Group in Autistic Spectrum Disorders (ASD) |
The Psychological Society of Ireland (PSI) |
General Research |
National |
Special Interest Groups (SIGs) |
|
|
The Special Interest Group in Autistic Spectrum Disorders (ASD) -
The Psychological Society of Ireland (PSI)
The Special Interest Group in Autistic Spectrum Disorders (ASD) promotes research related to ASD and awareness of the needs of people with an ASD, their families and carers.
|
|
|
|
|
|
|
| The Value of Treatment |
European Brain Council (EBC) |
General Research |
|
|
|
|
The Value of Treatment -
European Brain Council (EBC)
The Value of Treatment Research Project provides evidence-based and cost-effective policy recommendations for the adoption and implementation of a more patient-centred and sustainable coordinated care model for brain disorders.
|
|
|
|
|
|
|
| The Young Researchers |
The Royal Mental Health Care |
General Research |
State |
Research |
|
|
The Young Researchers -
The Royal Mental Health Care
The Young Researchers at the Royal’s Institute of Mental Health Research (IMHR) is a group of students and early career researchers dedicated to enhancing collaborations, networking, research as well as educational and training opportunities for individuals working in mental health research.
|
|
|
|
|
|
|
| The Collaborative Pathway Project |
The Foundation for Excellence in Mental Health Care |
General Research |
Global |
Recovery Services |
|
|
The Collaborative Pathway Project -
The Foundation for Excellence in Mental Health Care
The Collaborative Pathway project changes the trajectory of young people encountering the mental health system from disability and chronicity to recovery-oriented self-direction. The person in crisis and their families are included in treatment decisions from the start, using clear, everyday language to make decision-making accessible.
The Collaborative Pathway (CP) uses an existing, state-of-the-art, recovery-oriented mobile crisis team to deliver services in the home whenever possible, avert unnecessary hospitalization, and build on the strengths and preferences of the person and family. CP includes shared decision-making and informed choice about neuroleptic medications. It applies “collaborative psychopharmacology” principles, honoring the option of using little or no neuroleptic and opting for benzodiazepines for symptomatic relief of anxiety/insomnia, if these are the person and family’s preference. Such neuroleptic minimization /delay has been shown to have no long-term negative consequences, allowing individuals and families time to collaborate on treatment decisions. CP slows down treatment by working with the person and family in a safe, “holding” network, offering more treatment choice and defusing alienation and “non-compliance.”
A Collaborative Pathway team with clinical training and training in using research instruments for capturing outcomes is being developed. Research staff are being added and IRB approval from the Department of Mental Health is expected. The project is anticipated to show that engaging young people with early psychosis in fully informed consent and shared decision-making about all medication can be accomplished safely. Outcomes should be as good, or better, than standard care in these ways:
- Number of adverse events
- Days of hospitalization
- Days of work or school
- Satisfaction with services;
- A sense of agency in one’s own care
- Ggreater adherence and less need for neuroleptic medications.
|
|
|
|
|
|
|