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Schizophrenia & Psychosis - Organisations

home | | Schizophrenia & Psychosis | Organisations

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American Schizophrenia Association (ASA)
American Schizophrenia Association (ASA)

American Schizophrenia Association (ASA) funds CURE research and is at the forefront of the fight to save lives & make Schizophrenia a thing of the past. The American Schizophrenia Association (ASA) is a 501(c)3 nonprofit organization involved in fund raising & medical research with the direct mandate of taking on the most disabling and destructive psychiatric disorder of all, Schizophrenia.  The ASA's mission is to support academic and professional researchers as they study brain chemistry and related bio-medical disciplines with a directed approach to finding a CURE for Schizophrenia and other brain related disorders.

 

Organisation

Country: United States of America

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Australian Schizophrenia Research Bank (ASRB)
Australian Schizophrenia Research Bank (ASRB)

the Australian Schizophrenia Research Bank (ASRB) collects and links genetic, clinical, neuropsychological and brain imaging information from over 1,000 individuals with schizophrenia and healthy controls. Data from this unique resource is particularly important to support schizophrenia-related studies conducted by scientists who do not have the capacity to collect their own data on such a large scale.

The Australian Schizophrenia Research Bank is the biggest research program of its type ever undertaken in Australia. The volunteers who participate in this project will be key contributors to a research resource which may provide researchers with a unique breakthrough. The primary aim of the Schizophrenia Research Bank is to facilitate research by collecting, storing and providing comprehensive, cross-referenced clinical, neuropsychological, genetic and brain imaging data from people with schizophrenia and healthy controls.

 

Organisation

Address: NeuRA’s Margarete Ainsworth building in Randwick

Country: Australia

Email: k.johnston@neura.edu.au

Call 1800 639 295

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English Hearing Voices Network
English Hearing Voices Network

The English Hearing Voices Network is one of many similar networks around the world who focus on helping to create respectful and empowering spaces, whilst challenging the inequalities & oppressive practices that hold people back. They aim to raise awareness of the diversity of voices, visions and similar experiences; challenge negative stereotypes, stigma and discrimination; help create more spaces for people of all ages and backgrounds to talk freely about voice-hearing, visions and similar sensory experiences; raise awareness of a range of different ways to manage distressing, confusing or difficult voices; and encourage a more positive response to voice-hearing and related experiences in healthcare settings and wider society. Some of the things they do include:

  • Sharing information and free resources through our website, social media, e-bulletin, newsletter and email information service
  • Engaging with the media to present realistic and hopeful perspectives on hearing voices and related experiences
  • Offering workshops, training and events – subject to resources
  • Supporting members who want to set up a Hearing Voices Group
DSM 5 & Psychiatric Diagnosis
DSM 5 & Psychiatric Diagnosis

The Hearing Voices Network, alongside many of our professional allies in psychology and psychiatry, has serious concerns about the way we currently understand, categorise and respond to mental distress . We also recognise the confusion that can be caused when accepted facts, often presented to service users as truths, are challenged. Thery believe that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system. People who use services are the true experts on how those services could be developed and delivered; they are the ones that know exactly what they need, what works well and what improvements need to be made. This statement outlines the main issues, as we see them, and invites people on the receiving end of a diagnosis to have a voice in this debate.

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Famous People Who Hear Voices
Famous People Who Hear Voices

Famous People Who Hear Voices is a page of famous and noted people have spoken about their voice-hearing experiences in the media. 

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Getting Help & Support
Getting Help & Support

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National Networks
National Networks

Country
United Kingdom of Great Britain and Northern Ireland

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Online Gatherings
Online Gatherings

Hearing Voices Network is trying to create some online spaces for those interested in voices, visions and related experiences to connect and explore experiences from different angles that will be publicised on their news page and through social media.

Country
United Kingdom of Great Britain and Northern Ireland

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Online Groups
Online Groups

Online groups are run along the lines of regular in-person groups – the main difference being you are online. People often use the cameras and microphones with their computer, laptop, tablet or smartphone to access them. If you want more information, contact the facilitators directly. These include the following groups

  • Voice Collective 16-25 Group: an established peer support group for young people aged 16-25 years who hear voices, see visions or have related experiences, facilitated by Fiona, Nikki and/or Jess from Mind in Camden’s Voice Collective project. Their groups are on Wednesday from 5:30-6:30pm.
  • New online Hearing Voices Group: a group run by Bonny Astor, Ben Ellsworth & Kit on Wednesdays between 5:30-6:45pm Wednesdays - hearingvoicesonlinegroup@gmail.com
  • Talking Sense: an established evening Hearing Voices Group that has now moved online on Wednesdays at 19:00pm. It is facilitated by Lauren and Janey. Email them at talkingsenselondon@gmail.com for more info.

 

Country
United Kingdom of Great Britain and Northern Ireland

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Personal Experiences
Personal Experiences

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Setting Up Online Groups
Setting Up Online Groups

Online Hearing Voices Groups offer people who hear voices, see visions or have similar sensory experiences the chance to meet and support each other. They can become a safe haven where people feel accepted, valued and understood, however, rather than meeting in a physical location they take place in a virtual meeting room (using a platform such as ‘Zoom’).

 

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Support In Writing
Support In Writing

Support in writing includes email support and online forums, which are especially useful if you want to access support at any time of the day or night or don’t like groups/video conferencing. These include:

  • Online Peer Support Forum: a secure and supported online space to share your experiences, learn from and support others. Supported by HVN volunteers and trustees, this space is open to people with direct experiences of voices, visions and related experiences (including family/supporters). We have some separate spaces for people who hear voices and family/friends. Posts are only visible to registered users.
  • National Paranoia Network‘s Email Support Service: is working with allies around the world to provide an international email support service. They do their best to respond quickly in a language that works for you. support@nationalparanoianetwork.org

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The Hearing Voice Network Forum
The Hearing Voice Network Forum

The Hearing Voice Network Forum is a forum for people who hear voices, see visions, have other ‘unusual’ sensory experiences or beliefs, and their supporters. 

Country
United Kingdom of Great Britain and Northern Ireland

Contact Person / Email
info@hearing-voices.org

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The Hearing Voices Groups and Networks Map
The Hearing Voices Groups and Networks Map

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Time For Real Change
Time For Real Change

The Hearing Voices Network trustees convened a one day event to bring together people and organisations who seek change to explore what needs to change and what we can do differently to make it happen. 

Contact Person / Email
info@hearing-voices.org

Voices & Visions
Voices & Visions

Voices and Visions contains some basic information about voices, visions and other unusual sensory perceptions.

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Organisation

Address: 86-90 Paul Street, London, EC2A 4NE

Country: United Kingdom of Great Britain and Northern Ireland

Email: info@hearing-voices.org

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Board of Directors / Executive Board Constitution & Charter

Activities & Events

News Events Support or Self-Help Groups Education & Training Forums

Opportunities

Membership Fundraising

Resources

Resources Fact Sheets Newsletters & Magazines Videos Stories & Speeches Information Links, Partners & Supporters

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First Episode and Early Psychosis Assessment
First Episode and Early Psychosis Assessment

 

Organisation

Address: Währinger Gürtel 18-20, 1090 Vienna

Country: Azerbaijan

Email: fea@meduniwien.ac.at

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Headspace Early Psychosis Program
Headspace Early Psychosis Program

The headspace Early Psychosis program supports young people in every aspect of their recovery, including best practice treatment, education and employment support and managing relationships. This program offers free and confidential support for young people who are experiencing an early episode of psychosis or are at risk of developing psychosis. As part of the program, young people can access:

  • Specialty trained mental health professionals
  • Support to help them get back to study or work
  • Support with everyday life skills, e.g. shopping, travelling
  • Creative therapy e.g. art or music groups 
  • Social group activities (e.g. cooking, going to the movies) with other young people who have had similar experiences.
  • Early Psychosis Referral Checklist

Headspace Early Psychosis not only provides specialist clinical case managers but also a range of peer support and family workers who’ll work with young people and their families to achieve their goals.Young people work with a specialist case manager who develops an individual treatment plan and provides support throughout the treatment. Mobile Assessment Treatment teams also provide assessment, community outreach and support after hours. These specialists undertake initial assessments and treatment for young people and their family. As part of the headspace Early Psychosis program, families receive support, information and education about psychosis. They can attend family meetings and group sessions to get support from other families with a young person experiencing psychosis. Parents and families can also access a qualified youth mental health professional in a confidential, free and secure manner through their centre or after hours, through eheadspace. 14 headspace Centres deliver headspace Early Psychosis:

  • Adelaide
  • Bentleigh
  • Dandenong
  • Frankston
  • Narre Warren
  • Darwin
  • Mount Druitt
  • Parramatta
  • Penrith
  • Joonadalup
  • Midland
  • Osborne Park
  • Meadowbrook
  • Southport

 

Organisation

Country: Australia

Call (03) 9027 0100

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Hearing Voices Australia
Hearing Voices Australia

The Hearing Voices Network Australia (HVNA) is a national network, bringing together the efforts of the country’s networks, voice hearers’ families and HV allies. It raises awareness and understanding about the phenomenon of hearing voices and introduce a different approach to hearing voices, seeing visions and other unusual experiences. HVNA influence and encourage the emergence of State-based networks throughout Australia, which in turn has facilitated the emergence of many hearing voices groups across the country. It is a part of hearing voices related programs, conferences and research on voice hearing experiences, the development of training for professionals, consumers and families in the Hearing Voices Approach.

Their website is intended to be a resource to introduce people to the Hearing Voices Network within the Australian context – essentially to be a portal for connection to State Hearing Voices Networks and sundry Hearing Voices Groups across Australia and to provide access to some resources that may light your fire in understanding hearing voices experiences and this way of working with (as opposed to against) voices.It is a place for allies to come together and create a community where mental, psychological and emotional human difference and diversity is accepted and appreciated.

 

Organisation

Address: 8 Egret Place Woronora Heights NSW 2233

Postal Address: PO Box 682, Bentley WA 6982

Email: info@hvnnsw.org.au

Call 0425 334 244

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Hearing Voices Ireland (HVI)
Hearing Voices Ireland (HVI)

Hearing Voices Ireland (HVI) promotes and fosters acceptance of voice hearing as a valid human experience. The website allows one to 

  • Read stories
  • Video & Audio: listen to audio interviews and watch video where people talk about their voice hearing experience.
  • News: provides news relevant to the Irish voice hearing community
  • Provides iinformation about voice hearing self help groups around the country that is constantly being updated and
  • Links: provides links to other relevant websites.
Ireland Hearing Voices Groups
Ireland Hearing Voices Groups

Voices Groups are hearing voices self help groups in Ireland. These include:

  • Bantry Hearing Voices Group: a hearing voices group is running in Bantry (West Cork) @ that meets at Droumleigh Resource Centre on the 3rd Friday of the month - 027-52970
  • Belfast Hearing Voices Group: the Belfast group has been running for a number of years after a founding member of the English hearing voices movement, Jacquie Dillon came to Belfast. Since then we have been to a number of conferences as a group, including Manchester, Canterbury and a number of other one day conferences at which we have done work shops about the positive benefits of self help groups for voice hearers. 
  • Clonakilty Voices Group: Clonakilty: The Focus Programme meets 3-4:30 on the first Friday of the month - 027-52970
  • Cork Hearing Voices Group: is currently only open to service users of the South Lee Mental Health Service, Cork. Bishopstown Library, Wilton, Cork, Hearing Voices Group runs every second Friday from 1-2 pm. The group is co-facilitated by an expert by experience and a mental health nurse (Sean Spillane). Currently this group is open to all service users of the South Lee Mental Health Service outpatients only, individual work is facilitated for inpatients - sean.spillane@hse.ie - 0214234304 or 0877618618.
  • CORK (Douglas HVG): a public group is open to Voices Hearers in the Cork area. It is located in Brandon House, Dosco Industrial Estate, South Douglas Road, Cork every Tuesday 11.00-2.00pm - 021 4362701 - Kathy.crowley@rehab.ie or Paul.seymour@rehab.ie
  • CORK (Mahon/Blackrock HVG): is a group open to Voices Hearers and people with unusual beliefs who attend Blackrock Hall Mental Health Services as outpatients - Blackrock Hall, Primary Care Centre, Skehard Road, Blackrock on Wednesdays 14.20-15.30pm - 0214233162
  • Donegal Hearing Voices Group is a group hat aims to offer a safe place for people to feel accepted and comfortable sharing their experiences of voices, visions, tactile sensations and other unusual experiences and perceptions. People will meet together to help and support each other, to exchange information, and to learn from one another. It will also offer an opportunity for people to accept and “live with voices” in a way that enables them to regain some control over their lives. The group is held Regional Cultural Centre, Port Road (Letterkenny) from 11.30am – 1pm on the 1st and 4th Thursday of every month - Ursula 087 9053747.
  • Dublin Hearing Voices Group: is a group for people who hear voices, see things and other unusual experiences are common responses to extreme stress. Meetings are held weekly from 6.30pm–8.00pm at Hill Street Family Resource Centre, Dublin 1 - 083-1997775 or 085-7827596.
  • Dublin-Ballyfermot Hearing Voices Group: support for people who hear voices and other sensory experiences open only to people accessing services locally.
  • Dublin-Clondalkin Hearing Voices Group: provides support for people who hear voices and other sensory experiences in a safe and friendly space to talk and an opportunity to learn from other voice hearers. The group is held every 3rd Thursdays 4:00-5:00pm @ Clondalkin Mental Health Centre, Orchard Road, Dublin 2 - 01 457 0009 - sarah.kehoe@hse.ie for further information
  • Dublin South East Hearing Voices Group: a group that aims to provide a safe space to talk about visions and voices, to promote acceptance, validation and peer support, and to learn what voices may mean and how to live well with them. The group is on Thursdays from 12:30-1.30pm at Burton Hall, Sandyford (Dublin) - mark.omahoney@sjog.ie - (01) 2955888
  • Dublin-Tallaght Hearing Group: a group is open only to those attending the Tallaght Acute Unit. The group runs every three months on a Thursday. Phone Aurelia Nxumalo, or Mary O’Toole - (01) 41433 - email Aurelia.Nxumaro@amnch.ie
  • Kildare Hearing Voices Group: a group running in the Health Centre on Station Road in Newbridge and will run on Tuesdays from 3.30pm. It is starting on the 27th of October 2015 at 3:30pm -  045 521220 - florence.daniel@hse.ie
  • Kilkenny Hearing Voices Group is a group that meets every Tuesday from 7:00pm to 8:30pm in The Mews Building, Collier’s Lane, Kilkenny City and is facilitated by current and past service users and a psychologist -l hearingvoiceskilkenny@gmail.com or get involved on https://groups.google.com/d/forum/kilkenny-hearing-voices-group.
  • Longford Hearing Voices Group (Echo) is a peer support group will meet monthly in Longford - 086 8525281 or 086 3803473
  • Mayo Hearing Voices Group: a group that meets Wednesdays every week between 17:30–19:00 at the Mayo mental Health Association, New Antrim Street, Castlebar, Co Mayo - 089 2288552
  • Tipperary Hearing Voices Group: is a group open to voice hearers who attend services locally every Wednesday at 2:00pm in Cuan Croi Day Centre, Tipperary Town - 062 82123.
  • INTERVOICE Google Hearing Voices Movement World Map

Country
United Kingdom of Great Britain and Northern Ireland

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Organisation

Country: Ireland

Email: voicesireland@gmail.com

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Resources

Videos Stories & Speeches Links, Partners & Supporters

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Hearing Voices Network (USA)
Hearing Voices Network (USA)

The Hearing Voices Network USA represents a partnership between individuals who hear voices or have other extreme or unusual experiences, professionals and allies in the community, all of whom are working together to change the assumptions made about these phenomenon and create supports, learning and healing opportunities for people across the country. Their work includes:

  • Promoting and supporting the development of HVN support groups in accordance with the HVN-USA Charter
  • Providing training for providers, family, friends and the general public on the HVN approach and the experience of hearing voices and other unusual or extreme experiences
  • Providing training for individuals interested in becoming HVN group facilitators and starting new groups
  • Supporting HVN group facilitators to network and support one another
  • Promoting access to information and resources about hearing voices and related topics

 

Organisation

Country: United States of America

Email: info@hearingvoicesusa.org

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Board of Directors / Executive Board Constitution & Charter

Activities & Events

Events Support or Self-Help Groups Education & Training

Resources

Resources Newsletters & Magazines Links, Partners & Supporters

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Hearing Voices Network Autearoa New Zealand
Hearing Voices Network Autearoa New Zealand

The Hearing Voices Network Aotearoa NZ – Te Reo Orooro is an Independent Registered Charity made up of voice hearers, friends and family, caregivers, mental health workers and concerned citizens. Hearing Voices Network Aotearoa NZ Inc provides:

  • Information
  • Research
  • Resources
  • Peer Support groups
  • Public awareness events
  • Workshops and trainings 

By sharing the experience of voice hearers that have recovered, we listen to what they say has worked for them on their journeys. Giving credence to the voice of experience. The Hearing Voices Network supports research into non medical alternatives. We let our members decide what works and what doesn’t. Coming together to share ways in which people can work to help themselves. For some it may be a simple regime of exercise that helps, others nutrition, others changing their point of view of the voices. In our groups we may discuss, meditation, acupuncture, reiki, or any other area of interest.

Advice For Friends
Advice For Friends

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Complementary Medicine
Complementary Medicine

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Coping Strategies
Coping Strategies

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Maori Perspective
Maori Perspective

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Oriental Perspective
Oriental Perspective

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Polynesian Perspective
Polynesian Perspective

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Sharmanic Perspective
Sharmanic Perspective

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Organisation

Country: New Zealand

Email: hvnanz@gmail.com

Call 0272650266

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Activities & Events

Events Support or Self-Help Groups Workshops

Opportunities

Membership Donations

Resources

Research Books Newsletters & Magazines Blogs Stories & Speeches Links, Partners & Supporters

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Living With Schizohrenia
Living With Schizohrenia

Living with schizophrenia is a platform for those living with schizophrenia in the wider sense: sufferers, carers and relatives, to try to bring a fresh insight to the subjects of schizophrenia and schizo-affective disorder and to provide information about the condition to all those living with it.  Living with Schizophrenia will seek to provide first hand knowledge whilst also challenging the stigma and myths that surround this condition. In particular we will try to provide information that will help those living with schizophrenia to overcome the wide divide that exists in the UK today between adequate clinical outcomes and poor social ones.

Causes of Schizophrenia
Causes of Schizophrenia

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Modern Treatments
Modern Treatments

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Myths About Schizophrenia
Myths About Schizophrenia

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Schizophrenia Risk Factors
Schizophrenia Risk Factors

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Symptoms of Schizophrenia
Symptoms of Schizophrenia

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What is Schizophrenia
What is Schizophrenia

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Organisation

Address: LWS (UK) CIC PO Box 288, Plymouth, Devon, PL5 9BS

Country: United Kingdom of Great Britain and Northern Ireland

Email: info@livingwithschizophreniauk.org

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Activities & Events

Opportunities

Donations

Resources

Fact Sheets

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Melissa Roberts Foundation (MRF)
Melissa Roberts Foundation (MRF)

The MRF provides a service that supports, informs, trains and educates people who are disempowered by their lived experience of hearing voices, paranoia and childhood trauma, thereby enhancing their pathway to recovery. Our service extends to carers and family, mental health organisations, health workers and professionals, educational institutions and the general community.

 

Organisation

Country: Australia

Email: info@melissarobertsfoundation.org.au

Call 0425 334 244

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National Paranoia Network
National Paranoia Network

The Paranoia Network is an organisation that raises awareness of how disabling paranoia can be and to breakdown social taboos. The Network runs training sessions globally to professional bodies and all interested parties on how to understand a person’s paranoia and help them make sense of it. The first Paranoia Network in Australia was launched on the 5th April in Perth Australia following the work of the Paranoia Network in Melbourne, Sydney, Perth, Brisbane and Cairns. The Paranoia Network offers training around Paranoia, Hearing Voices, and Trauma: 

  • Run in-house training to psychiatrists, psychologists, nurses, social workers and all interested parties
  • Organise our own training events and conferences.
  • Offer a limited one to one service and also have a confidential helpline (0114 2718210).
National Paranoia Network Training
National Paranoia Network Training

The Paranoia Network offers training around Paranoia, Hearing Voices and Trauma to psychiatrists, psychologists, nurses, social workers and all interested parties. 

  • Proposal to deliver training on how to use the Maastricht Interview for Voices A Social & Biographical Approach to Hearing Voices a Lived Experience Perspective
  • Proposal to deliver training on how to use the Maastricht Interview for Problematic Thoughts Beliefs & Paranoia A Social & Biographical Approach a Lived Experience Perspective

  • Understanding and working with voices

  • Working with childhood trauma and abuse

  • Working through paranoia and making sense of unusual beliefs

  • Starting and sustaining hearing voices and paranoia support groups

 

 

Country
United Kingdom of Great Britain and Northern Ireland

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Self-Help Groups
Self-Help Groups

The National Paranoia Network run a self help support group every Monday 10.30-11.30am at the Limbrick Centre, Limbrick Road, Sheffield S6 2PE. The group is open to anyone who experiences Paranoia or Hearing Voices, the group is facilitated by people who have personal experience of paranoia and hearing voices. The group is self referral so you do not have to be in mental health services to attend. If you are interested but find the prospect of attending quiet daunting you can meet with one of the facilitators prior to attending.

 

Self help groups are meetings where people who suffer with paranoia can get together without having to “put on a mask” and speak with others who have “been there”. Self help groups should not be viewed as therapy but as a place where you can receive encouragement, reassurance, support and a listening ear. The meetings can help reduce the terrible feeling of isolation associated with paranoia. It can provide a supportive, informal environment where people can share their fears, worries and ways of coping with paranoia that have worked for them. You will hear how each person’s experience is different but will also see that there are many feelings that are shared by others. This will allow you to support others as well as get support yourself.

Address
Orange Tree Theatre, 1 Clarence Street, Richmond, TW9 2SA

Country
United Kingdom of Great Britain and Northern Ireland

Contact Person / Email
Wendy Micklewright

Call 0208 898 6727

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Speak Out No Harm Campaign
Speak Out No Harm Campaign

The “Speak Out” No Harm Campaign aims to raise awareness of abuse and trauma currently experienced by children in society today. They aim not just to get psychiatric services talking about trauma and abuse; but to help society to take a long hard look at its self and take responsibility for their actions. They will be selling bracelets with “Speak Out” and No Harm on them so society can begin to talk openly about this topic they can be purchased at the online shop. They will also welcome other contributors to submit articles, stories, statistics etc for this campaign please forward them to This email address is being protected from spambots.

Country
United Kingdom of Great Britain and Northern Ireland

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Organisation

Address: Limbrick Centre Limbrick Road Sheffield S6 2PE

Country: United Kingdom of Great Britain and Northern Ireland

Email: enquiries@nationalparanoianetwork.org

Call 0114 2718210

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Staff / Team

Activities & Events

News Events Support or Self-Help Groups Education & Training

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Newsletters & Magazines

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PsykosR is a quality register for Swedish psychosis care. We want everyone affected by psychosis to have access to the care and support that works best. In the register, healthcare professionals collect information about patients and treatments, which mak
PsykosR is a quality register for Swedish psychosis care. We want everyone affected by psychosis to have access to the care and support that works best. In the register, healthcare professionals collect information about patients and treatments, which mak

PsykosR is a quality register for Swedish psychosis care to have access to the care and support that works best. In the register, healthcare professionals collect information about patients and treatments, which makes it possible to measure the quality of psychosis care, evaluate and improve it. PsykosR works in the following areas:

  • Automated retrieval from journal: the work to create opportunities for county councils to automatically retrieve data from data journal templates to the register has intensified. This would make things easier for staff. In Stockholm, this is already being done, more information can be found on the Resource page for annual control here to the right.
  • National quality indicators and programmes of care and intervention for schizophrenia: PsykosR has a close collaboration with the national working group for schizophrenia that works within the Program Area Mental Health to develop a Care and Intervention Program for Schizophrenia and Schizophrenia-Like Conditions (VIP). You can read more about this work here the Mission Mental Health Program is available on www.vardochinsats.se. The programme will be followed up using the national indicators developed by PsykosR together with the working group. Read more about the Priority National Performance Indicators. You can also read about registering in PsychosR in VIP schizophrenia
  • Psychosocial interventions: PsykosR supports the work to increase the use of knowledge-based psychosocial interventions in health and social care such as IMR (illness management and recovery) and NECT (Narrative Enhancement and Cognitive Therapy). PsykosR has helped to train staff, develop and develop materials for these efforts. Read more under Care and support.
  • Research: since the quality register provides data and follow-up with the same patient over a longer period of time, it has a great potential that has also aroused interest among several research groups. PsykosR therefore has several research projects underway – including a recently expanded collaboration with a research group at Karolinska Institutet. It is above all in the use of the register's data that much work remains to be done and this will be visible here on the website later on.
  • Knowledge and inspiration: PsykosR arranged continuing education in the form of theme days and training days for contact persons. The hope is to be able to resume this work. See examples here.
  • Physical health and health promotion: the physical ill-health of people with psychosis is worryingly high. Through the psychosis register, the unit in question can follow which interventions are offered to the users, such as health talks and whether they give results. Together with specialist psychiatry and primary care in Region Uppsala, PsykosR ran a development work to prevent and treat unhealthy lifestyle habits in people with severe mental illness. Through good collaboration, increased knowledge and better access to interventions, the project hoped to improve physical health and quality of life in people with psychosis.
  • Online survey Psykiatrikollen: the Psychosis Register has developed the online questionnaire Psykiatrikollen. A way to be able to measure how patients / users or relatives experience participation, treatment, accessibility and other important parts of good care. The Psychiatry Check website is closed until further notice as there are no resources for necessary security updates. If you have any questions, please email uppdragpsykiskhalsa@skr.se
  • Newsletter: in PsykosR's newsletter, you get information about what is happening on the register, current statistics, projects in psychosis care in Sweden and about exciting news in research. In addition to this, the newsletter will update you on how the work, with the dissemination and implementation of the national care and intervention program for schizophrenia and schizophrenia-like conditions, is progressing. Do you want the newsletter? Send an email to info@psykosr.se. To take part of previous newsletters go to the News Archive

 

Organisation

Country: Sweden

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Schizophrenia and Related Disorders Alliance of America (SARDAA)
Schizophrenia and Related Disorders Alliance of America (SARDAA)

Schizophrenia and Related Disorders Alliance of America (SARDAA) promotes improvement in the lives of people with schizophrenia-related disorders and their families.SARDAA promotes hope and recovery through support programs, education, collaboration, and advocacy.

 

Early Intervention & First Episode Clinics
Early Intervention & First Episode Clinics

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Families For Care
Families For Care

Families for Care (FFC) is a support group for families of diagnosed individuals with schizophrenia or schizophrenia-related brain illness. Schizophrenia-related illnesses are illnesses that include psychosis, such as schizoaffective disorder, bipolar disorder, and major depression with psychosis. Family and Friends (Now Families for Care) was founded in 2008, and in that time, has reached thousands of families/friends seeking guidance and acceptance of individuals who experience psychosis. We offer a non-judgmental community of concern and fellow travelers. This journey is not for the faint of heart. But with education and acceptance, you can find your way to a more loving and peaceful home and relationship with your loved ones. And you’ll find hope, which is so vital for families with a loved one with illnesses that include psychosis.

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Government Agencies
Government Agencies

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Hearing Voices of Support
Hearing Voices of Support

Positive voices of support can make a difference to people affected by schizophrenia and related brain disorders. Their perception-changing Hearing Voices of Support interactive art installation, featuring the voices and images of people affected by schizophrenia-related brain disorders was a huge success

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International Groups
International Groups

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Legal Issues
Legal Issues

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Mental Health Policy
Mental Health Policy

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National Organisations
National Organisations

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Professional Organisations
Professional Organisations

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Schizophrenia Alliance
Schizophrenia Alliance

Schizophrenia Alliance (SA) is a self-help group for persons who have schizophrenia or a schizophrenia-related illness. SA was founded in the Detroit area in July of 1985 and since that time, thousands of people have participated in meetings. There are currently more than 150 groups meeting throughout 31 states, as well as Australia, Brazil, Canada, Mexico, France, Izuela.ndia, and Venesuala. Schizophrenia Alliance is organized and managed by persons experiencing schizophrenia or a related disorder. It is administered in partnership with SARDAA. 

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Schizophrenia Alliance Support Groups
Schizophrenia Alliance Support Groups

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Organisation

Address: 2308 Mount Vernon Avenue, Suite 207 Alexandria, VA 22301-1328

Country: United States of America

Email: info@sardaa,org

Call 240-423-9432

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Schizophrenia Research Insitutute
Schizophrenia Research Insitutute

The Schizophrenia Research Institute is a national medical research institute solely dedicated to discovering the ways to better treat, prevent and cure schizophrenia. The organisation conducts and supports schizophrenia research in hospitals, universities and research institutes across the country and internationally. The Schizophrenia Research Institute drives a proactive research agenda, has invested over $26 million and has had numerous successes to date. The Institute is funded by government grants (NSW Health), corporate and private donations. The Schizophrenia Research Institute’s mission is to discover the ways to understand, better treat, prevent and cure schizophrenia.

The Schizophrenia Research Institute supports schizophrenia-related research in a wide range of scientific domains, from basic neuroscience and genetics through to clinical and population-based studies, and has developed a wide range of new initiatives, initially throughout New South Wales, but increasingly on a national scale. The institute supports a multi-disciplinary program of schizophrenia research in the areas of Developmental Neurobiology, Cognitive Neuroscience and Epidemiology. The Schizophrenia Research Institute has also been instrumental in developing schizophrenia research infrastructure facilities, which have provided a foundation for a range of research findings.

 

Organisation

Address: NeuRA’s Margarete Ainsworth building in Randwick.

Country: Australia

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Schizophrenia Society of Canada
Schizophrenia Society of Canada

The Schizophrenia Society of Canada is a national registered charity that  work with 10 provincial societies to help individuals with schizophrenia and their families have a better quality of life while we search for a cure. At SSC we are committed to raising awareness and educating the public to help reduce mental disorders stigma and discrimination, supporting families and individuals, advocating for legislative change and improved schizophrenia treatment and mental health services and supporting research through the SSC Foundation and other independent efforts. The Schizophrenia Society of Canada works in partnership with the following organizations across Canada:

  • British Columbia Schizophrenia Society
  • Institute for Advancements in Mental Health (formerly the Schizophrenia Society of Ontario)
  • Manitoba Schizophrenia Society
  • Mental Health Recovery Partners
  • Schizophrenia Society of Alberta
  • Schizophrenia Society of New Brunswick
  • Schizophrenia Society of Newfoundland and Labrador
  • Schizophrenia Society of Nova Scotia
  • Schizophrenia Society of Saskatchewan
  • Société québécoise de la schizophrénie
  • Mental Health Commission of Canada
  • Canadian Consortium of Early Intervention in Psychosis

As well, the SSC is a member of the Canadian Alliance on Mental Illness and Mental Health which is a non-profit organization comprised of mental health care providers as well as organizations which represent individuals with lived experience of mental illness and their families. “A fundamental objective of CAMIMH is to engage Canadians in a national conversation about mental illness. By starting this conversation, CAMIMH hopes to reduce the stigma associated with mental illness and provide insight into the services and support available to those living with mental illness.”

 

Cannabis & Psychosis: Exploring The Link
Cannabis & Psychosis: Exploring The Link

Cannabis and Psychosis: Exploring the Link is a project of the Schizophrenia Society of Canada. Guided by the expertise of our Youth Advisory Committee, Content Advisors and Scientific Advisors, theyu aim to create a hub for youth to access and engage with information about cannabis and mental health that is balanced and meets their needs. Guided by the expertise of the Youth and Scientific Advisors, the aim of the project is to create a hub for accessible, engaging, balanced information to promote informed decision making about cannabis use among youth, specifically in relation to mental health.

Country
Canada

Contact Person / Email
info@cannabisandpsychosis.ca

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Learn More About Schizophrenia
Learn More About Schizophrenia

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The Iris Circle
The Iris Circle

The Iris Circle is a monthly donor club, which supports the Schizophrenia Society of Canada’s programs and initiatives on a monthly basis. By becoming a member of The Iris Circle and a monthly donor, you will enable the Society to continue to provide the necessary supports in the areas of family/individual support, public awareness/education, advocacy and research.

Country
Canada

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The Schizophrenia Society of Canada Foundation (SSCF)
The Schizophrenia Society of Canada Foundation (SSCF)

The Schizophrenia Society of Canada Foundation (SSCF) funds research in the areas of molecular genetics, imaging and biochemistry of the central nervous system and psychosocial rehabilitation, with special emphasis on psychosis and schizophrenia. The foundation’s research funds are derived directly from interest generated from donations, some of which are restricted in terms of the areas of research that can be funded. An objective of SSCF has always been to leverage research funds and to ensure a credible process for making decisions on which research fellows or projects to fund. 

Country
Canada

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Organisation

Address: Schizophrenia Society of Canada 100 - 4 Fort Street Winnipeg, MB R3C1C4

Country: Canada

Email: Chris@schizophrenia.ca.

Call 1-204-320-3188

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Spiritual Crisis Network UK
Spiritual Crisis Network UK

The Spiritual Crisis Network is a UK non-profit organisation that provides support and resources to help make meaning of and integrate a crisis experience, resulting in the relief of suffering and more positive outcomes. Spiritual crisis, often called spiritual emergency, awakening or psycho-spiritual crisis, is a turbulent period of psychological opening and transformation.

 

Organisation

Country: United States Minor Outlying Islands

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Voice Collective
Voice Collective

Voice Collective is a UK-wide, London-based project that supports children and young people who hear voices, see visions, have other ‘unusual’ sensory experiences or beliefs. We also offer support for parents/families, and training for youth workers, social workers, mental health professionals and other supporters. The work is funded by BBC Children In Need and the Esmée Fairbairn Foundation, amongst others. Various aspects of the website include:

  • What are voices and visions
  • What It's Like
  • Who Hears Voices
  • Why Does it Happen?
  • Voices, Visions & Sexuality
  • Taboo, Voices & Visions

Voice Collective has been working in partnership with the Young Voices Study and Science Animated to produce three videos aimed at adults who are supporting a child or young person who hears voices. There are two strands to our service – work with children, young people & families, and work with professionals and organisations.

  • An Overview of Voice Collective’s Services
  • Voice Collective peer support groups
  • Creative Arts Workshops
  • Information, signposting & support
  • Training and workshops
  • Work with professionals and organisations
  • Guidance and support developing information resources, policies and practice to include and support young people who hear voices

 

 

Organisation

Address: Voice Collective, Mind in Camden, Barnes House, 9-15 Camden Road, London, NW1 9LQ

Country: United Kingdom of Great Britain and Northern Ireland

Email: info@voicecollective.co.uk

Call 020 7911 0822

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Voice Hearers of Australia
Voice Hearers of Australia

 

Organisation

Country: Australia

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