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Schizophrenia & Psychosis - Organisations

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Beyond Meds
Beyond Meds

Beyond Meds is a website that documents and shares many natural methods of self-care for finding and sustaining health in body, mind and spirit. This blog also deals with wider issues in the socio/political and spiritual realms as they pertain to mental health and human rights issues surrounding psychiatry. The blog and the content has evolved over time. The archives reflect that. The author saw the system from both sides – as a social worker and as a person whose life was severely ruptured by psychiatric drugs. She writes critically about the system, as well as about holistic pathways of healing without medication.  Everything Matters documents and shares many natural methods of self-care for finding and sustaining health in body, mind and spirit.

 

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Listening to the Silences
Listening to the Silences

Listening to the Silences is a website promoting a book written by Roy Vicent, Listening to the Silences.
 

 

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Country: United Kingdom of Great Britain and Northern Ireland

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Living With Schizohrenia
Living With Schizohrenia

Living with schizophrenia is a platform for those living with schizophrenia in the wider sense: sufferers, carers and relatives, to try to bring a fresh insight to the subjects of schizophrenia and schizo-affective disorder and to provide information about the condition to all those living with it.  Living with Schizophrenia will seek to provide first hand knowledge whilst also challenging the stigma and myths that surround this condition. In particular we will try to provide information that will help those living with schizophrenia to overcome the wide divide that exists in the UK today between adequate clinical outcomes and poor social ones.

Causes of Schizophrenia
Causes of Schizophrenia

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Modern Treatments
Modern Treatments

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Myths About Schizophrenia
Myths About Schizophrenia

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Schizophrenia Risk Factors
Schizophrenia Risk Factors

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Symptoms of Schizophrenia
Symptoms of Schizophrenia

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What is Schizophrenia
What is Schizophrenia

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Address: LWS (UK) CIC PO Box 288, Plymouth, Devon, PL5 9BS

Country: United Kingdom of Great Britain and Northern Ireland

Email: info@livingwithschizophreniauk.org

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Open Minded Online
Open Minded Online

Open Minded Online is a website dedicated to sharing ideas and resources about holistic approaches to emotional and social wellbeing

 

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Country: United Kingdom of Great Britain and Northern Ireland

Email: openmindedtraining@gmail.com

Call +44 (0)7926685432

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Open The Doors
Open The Doors

Cambridge University Press has published “Fighting the Stigma Because of Mental Illness”, a summary of the WPA Global Programme to Fight the Stigma and Discrimination because of Schizophrenia. In 1996, the World Psychiatric Association (WPA) embarked on an International Programme to Fight the Stigma and Discrimination because of Schizophrenia.

The WPA International Programme is designed to dispel the myths and misunderstandings surrounding schizophrenia. Stigma creates a vicious cycle of alienation and discrimination which can lead to social isolation, inability to work, alcohol or drug abuse, homelessness, or excessive institutionalization, all of which decrease the chance of recovery. The programme will fight the prejudice in all walks of life because it diminishes the quality of life of people with schizophrenia and their families and prevents them from living and working among us. The WPA programme is designed to:

  • Increase the awareness and knowledge of the nature of schizophrenia and treatment options;
  • Improve public attitudes about those who have or have had schizophrenia and their families;
  • Generate action to eliminate discrimination and prejudice.
Family & Friends
Family & Friends
  • Family & Friends
  • Message to Caregivers
  • Facts
  • Myths
  • Causes of Schizophrenia
  • How the Brain Operates Differently
  • Stepping Stones for Recovery
  • Reintegration
  • Schizophrenia at School
  • Links to Resources

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Local Action Groups
Local Action Groups

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Open Door Materials
Open Door Materials

The following materials were developed as tools to implement the WPA Programme to Reduce the Stigma and Discrimination Because of Schizophrenia. They are available for programme participants to customize to fit local culture and programme needs. The information from the WPA Programme to Reduce Stigma and Discrimination because of Schizophrenia has been divided into five volumes, available below.

  • Updated Bibliography 2006: a revised bibliography of books and journal articles on Stigma and more specifically on the Stigma associated with mental illness is now available here as well. The bibliography, authored by Professor Norman Sartorius and Dr. Marion Aichenberger is one of the most comprehensive on this important subject.
  • Training Manual: The Training Manual of the WPA “Open the Door” programme includes information on “Assessing Feasability”, “Developing Reasonable Goals and Objectives”, “Working with Community Neighborhoods” and other topics of great importance to those developing a stigma programme.
  • Volume I: Guidelines for Programme Implementation. Outlines a series of steps for developing a programme to reduce stigma and discrimination because of schizophrenia and includes an estimate of the time needed to complete each step. While it is expected that the time required may vary from site to site, it is recommended that sites follow the sequence as specified and complete all steps.
  • Volume II: information about Schizophrenia Relevant to Programme Implementation. Contains facts about schizophrenia selected on the basis of their relevance to such programmes. In this part of the programme document, messages of particular relevance to the reduction of stigma and discrimination are highlighted in the margins. The information in Volume II will be updated regularly to reflect new research findings and the experience of those participating in the programme at different sites
  • Volume IV: Compendium of Programmes Aiming to Reduce Stigma and Discrimination Because of Schizophrenia or Mental Illness in General. Contains information on anti-stigma programmes world-wide engaged in fighting mental illness stigma and discrimination. This compendium collects and reviews information on existing programmes and materials, in order to help those implementing the WPA Programme design their own project, and decide on the media materials to be used. The survey is ongoing and it is expected that many more programmes will be included as information about them is received. Additions will be published as supplements to this compendium.
  • Volume V: annotated List of Materials for use in Country Programmes. This volume is an annotated list of materials used in country anti-stigma programmes. The materials are indexed alphabetically by title, author, audience, media, and language.

 

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Schizophrenia Professionals
Schizophrenia Professionals
  • Symptoms of Schizophrenia
  • Negative Symptoms
  • Causes of Schizophrenia
  • Inheritance
  • Treatment
  • Public Health Problem
  • Links to Healthcare Professionals

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Paranoid Thoughts
Paranoid Thoughts

Paranoid Thoughts is a website is all about unfounded or excessive fears about others. Such fears may be refered to as 'paranoid thoughts' or 'paranoia'. The focus of this website is not on justified anxieties about others, but rather on exaggerated or unfounded fears - fears for which there is little or no convincing evidence. Exaggerated worries about others don't help us stay safe but instead can bring all manner of distress.  This website puts the experience of paranoia centre stage. It was set up in 2006 to mark the publication of the first self-help book on the topic, Overcoming Paranoid and Suspicious Thoughts. The book shows readers how they can use techniques based on the talking therapy CBT to cope with their paranoia (these techniques have been shown to be highly effective in reducing paranoia).

Assess Your Own Paranoia
Assess Your Own Paranoia

Assess your paranoia is a survey with the results from the survey being revealed.

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Getting Help for Paranoia
Getting Help for Paranoia

Paranoid Thoughts recommend reading Overcoming Paranoid and Suspicious Thoughts. This provides extensive information to help people understand exaggerated or unrealistic suspiciousness. Further, six practical steps are provided to help people cope with such fears. However, people sometimes want to consider other sources of help - perhaps seeing a therapist or trying medication. Or sometimes people simply want to find out a bit more about the issues.

So how do we know when it's right to ask for professional help?

There's no cut and dried answer to this one, but basically it boils down to:

  • How much distress the thoughts are causing
  • How much disruption the thoughts are causing on work, relationships, activities, or quality of life

If you do decide to seek professional help, it's crucial that you find the right person. If you think your GP doesn't understand paranoid thoughts and their treatment, ask to be referred to a specialist. It's relatively easy to get knowledgeable advice on medication, but harder to find someone with specialist psychological knowledge. In this section there is information on Cognitive Behaviour Therapy (CBT) & Medication.

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What is Paranoia?
What is Paranoia?

Paranoid Thoughts this website is not on justified anxieties about others, but rather on exaggerated or unfounded fears - fears for which there is little or no convincing evidence. Exaggerated worries about others don't help us stay safe but instead can bring all manner of distress.

What is paranoia?

We could have called this section: What are fears about others? We could also have titled it: What are paranoid feelings? Or: What are persecutory beliefs? Some people use the terms delusional thoughts or, for severe instances, persecutory delusions. The feelings discussed in this website, then, go by a variety of names. Partly this is because paranoia is a term that covers a wide spectrum of experiences. What we mean is:

  • The fear of something bad happening
  • The idea that others may intend to cause such an event>
  • The thought is exagerrated or unfounded.

These fears normally contain certain elements: a perpetrator, a type of threat, and a reason. We can suspect absolutely anyone of wanting to do us harm. Often the perpetrator is a neighbour, stranger, work colleague or family member. Occasionally it may be government organisations or spirits. Sometimes the identity of the person trying to cause the harm is unknown. The type of harm varies too. But typically the fear is of physical, psychological, social or financial harm. Why do people think others are targeting them for harm? Sometimes there's a feeling of simply being a victim, sometimes it is suspected that we're at risk because of who we are, and sometimes it because we think the threat is provoked by something we've done.

How can we tell whether our suspicious thoughts are justified?

How can we tell whether our worries are justified or not? Well, it's not always easy. If you're struggling to decide whether your suspicious thoughts are justified, ask yourself the following questions:

Would other people think my suspicions are realistic?

What would my best friend say?

Have I talked to others about my worries?

Is it possible that I have exaggerated the threat?

Is there any indisputable evidence for my suspicions?

Are my worries based on ambiguous events?

Are my worries based on my feelings rather than indisputable evidence?

Is it very likely that I would be singled out above anyone else?

Is there any evidence that runs contrary to my suspicions?

Is it possible that I'm being at all over-sensitive?

Do my suspicions persist despite reassurance from others that they are unfounded?

 

What are the causes of paranoia?

Research has identified five main factors involved in the occurrence of suspicious thoughts. All five factors are very common - all of us will have experienced at least some of them. What's important though is the way they combine. Suspicious thoughts are caused by a combination of some or all of these five factors:

  • Stress and major life changes. This includes difficult relationships with others at home or at work, and becoming isolated.
  • Negative emotions such as anxiety and depression. Often when we are anxious we can overestimate the chances of threat and worry too much
  • The way we feel has a big influence on the way we think.
  • Internal unusual feelings. Stress can often cause strange feelings (eg. feeling odd, aroused, threatened), as can going without sleep. Sometimes people can feel odd because they have taken drugs such as cannabis.

Our explanations. Paranoid thoughts are our way of trying to understand things. They are attempts to make sense of events. It's perfectly natural to try to understand the world around us - and the way we feel inside. But when we're stressed and feeling low or anxious or irritable our explanations are likely to be pretty negative. We think the worst - and often we think the worst of people around us. It can seem as if the odd or unpleasant things we've been experiencing are deliberately caused by other people.

Reasoning (the way we think things through and come to decisions and judgements). Often suspicious thoughts can take a grip if we do not think of alternative explanations for events, and do not fully consider the evidence for and against our worries. This is sometimes called jumping to conclusions. So, when we are stressed and things are perhaps not going too well, we can become anxious and interpret how we feel in terms of threat from other people, without fully weighing the evidence or considering alternative explanations.

 

How common is paranoia?

Until very recently - the last 15 to 20 years in fact - no one suspected just how many people had paranoid thoughts. But several research projects have now lifted the lid - and the results are striking. Here are just a few statistics from some of those research projects.

In a survey of 8580 UK adults, 21% said there'd been times over the past year when they'd felt people were against them. 9% said they'd believed that their thoughts were being controlled or interfered with by some outside force or person. 1.5% said there'd been times when they'd felt people were plotting to cause them serious harm.

A study of 1005 adults in New York found that 10.6% believed other people were following or spying on them. 6.9% thought people were plotting against them, or trying to poison them. 4.6% believed people were either secretly testing them, or experimenting upon them.

A French survey of 462 adults found that 25% had, at some point in their lives, felt that they were being persecuted in some way. 10.4% had sometimes believed there was a conspiracy against them.

A study of 1202 British university students (aged 16 to 61) assessed their feelings over the previous month. 42% said that, at least once a week, they had thought that negative comments about them might be circulating. 27% had felt that people were deliberately trying to irritate them, and 19% had thought that they might be being observed or followed. 5% thought there might be a conspiracy against them.

More than a thousand older adults (aged 55 and above) in Brooklyn, New York were assessed. 13% had, in the previous week, experienced paranoid thoughts.

Paranoia, then, is widespread - so widespread, in fact, that around 15 to 20% of the population have frequent paranoid thoughts. Most of those people aren't much troubled by their suspicious thoughts. But a further 3 to 5 % have pretty severe paranoia. For this smaller group of people, their paranoia is often serious enough to need specialist treatment.

 

Overcoming paranoia

Look after yourself. We're more likely to be troubled by paranoia if we're tired or run-down or very stressed. So make sure you eat healthily, get plenty of good-quality sleep, and exercise regularly. Make time too for things you enjoy: the more positive activities you have in your life, the less scope there'll be for paranoia to take hold.

Drinking too much, and using illicit drugs, can sometimes trigger paranoid thoughts. If you think they may be a factor in your paranoia, cut back or stop completely.

Consider the pros and cons. As we've seen, underlying paranoia is a fundamental decision about whether or not to trust other people. As a device to help you explore your own approach to this issue, make a list of the pros and cons of both trusting people and mistrusting them. Have you got the balance right, do you think? Would you like to be less mistrustful? Are there experiences from your past that might be having too great an influence on how you see people now

Share your fears. We know that people who don't talk about their paranoid thoughts generally find them more upsetting. So confide in someone you trust. Getting another perspective on your worries can be really helpful.

Get to know your paranoia. Like all problems, it's much easier to cope with our paranoid thoughts if we have a clear picture of them. So for the next seven days keep a diary of your paranoid thoughts - what they are, when they occur, and what might trigger them.

You may well find that particular situations tend to spark your paranoia (perhaps being very anxious or angry or bored, for example). And that will give you the chance to think how you can prevent these situations occurring, or at least how to deal with them better.

Incidentally, one of the great benefits of keeping a diary is that it gets your paranoid thoughts out of your head and onto paper. For many people, that can be a huge relief, and a terrific way of putting some distance between themselves and their paranoia.

Manage your worry. Worry is a very common reaction to paranoid thoughts. People fret about the harm they think other people intend towards them, and sometimes they also worry about what having these thoughts might mean (for example, that they're going mad). But the more we worry, the more anxious and fearful we become. Worry feeds on worry.

So we need to learn to manage our worry. One very useful technique is to save up all your worrying for one half-hour session every day: your worry period. And instead of worrying, try focusing your energy on solving the problem that's troubling you.

Challenge your paranoid thoughts. Choose a suspicious thought from your paranoia diary, and weigh up the evidence for and against it. Ask yourself these questions:

Is there anything that might suggest the thought is wrong?

What would my family or friends say if I talked to them about the thought?

What would I say to a friend who came to me with a similar problem?

Are there any alternative explanations for what seems to have happened?

Are my thoughts based more on the way I feel than on solid evidence?

Have I been jumping to conclusions?

If I were feeling happier or less anxious or less tired, would I still see things in the same way?

Test out your thoughts. Paranoia can make people so anxious and afraid that they change their behaviour, avoiding the situations that trigger their fears. But this only reinforces their paranoia, because it robs them of the chance to discover whether or not their fears are justified.

Testing out your paranoid thoughts involves actively seeking out the situations you're afraid of. That can be pretty nerve-wracking, so you need to go carefully. Draw up a list of tasks you find difficult and start with the relatively easy ones. Once you're comfortable with those, gradually work your way up to the more difficult tasks.

Incidentally, don't put yourself in situations where you're likely to be at real risk. You may be worried about going out alone, for instance, but don't test this by going into a dangerous neighbourhood at night. Concentrate on activities that most people would find reasonable and where you think your suspicious thoughts are probably exaggerated.

Let go of your paranoid thoughts. We're bound to have suspicious thoughts from time to time. It's unrealistic to think we can put a complete stop to them, but we can improve the way we deal with these thoughts when they do occur.

The trick is not to focus on them, to develop what's known as a mindful attitude. Don't fight your thoughts and don't spend time thinking about them. Try to be detached. Watch the thought come to you, remind yourself that it doesn't matter, and let it go off into the distance. Concentrate on what you're doing, rather than what you're thinking.

People often find it helps to repeat an encouraging phrase to themselves, for example "They're only thoughts - they don't matter"; "Keep going - you're doing really well"; "These thoughts don't scare me. I can cope."

 

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Country: United Kingdom of Great Britain and Northern Ireland

Email: paranoidthoughts@psych.ox.ac.uk

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Schizophrenia Forum
Schizophrenia Forum

 

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Successful Schizophrenia
Successful Schizophrenia

Successful Schizophrenia is a website iaimedto help psychiatry free itself from the delusions that keep it from being an effective medical speciality and to provide proof that thousands of people are right when they say they are NOT mentally ill"

 

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The Schizophrenia Home Page
The Schizophrenia Home Page

The Schizophrenia Home Page is a website  devoted to schizophrenia, and to helping the people who are living with it. The website features articles on diagnosis and treatment, as well as many helpful sections on reintegration. Schizophrenia.com hosts several discussion groups, including online support for patients, families, and friends, as well as separate forums for talking about medications and treatment.

 

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