Act on Dementia was a 3 year EU Joint Action to promote collaborative actions among Member States to improve the lives of people living with dementia and their carers. Building on the success of ALCOVE (Alzheimer Cooperative Valuation in Europe), the first Joint Action on Dementia, the European Commission supported the launch of a 2nd Joint Action through its health programme. The aim of this 2nd Joint Action was to provide practical guidance for policy makers developing and implementing their national dementia plans, policies and strategies and will focus on four key areas:

• Diagnosis and post-diagnostic support
• Crisis and care coordination
• Residential care
• Dementia-friendly communities

The action was led by the Scottish Government on behalf of the United Kingdom with participation from Bulgaria, France, Greece, Italy, Netherlands, Norway, Poland, Romania, Spain and the Department of Health from the United Kingdom. In addition, Cyprus, Germany, Luxembourg, Malta, Portugal as well as Alzheimer Europe contributed to the Joint Action as collaborating stakeholders.

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Alzheimer Europe is the umbrella organisation of 37 national Alzheimer's associations from 33 European countries. Alzhiemer Europe is a a non-profit non-governmental organisation (NGO) that aims to provide a voice to people with dementia and their carers, making dementia a European priority, changing perceptions and combating stigma, raising awareness of brain health and prevention, strengthening the European dementia movement and supporting dementia research.

Organisation

Address: 14, rue Dicks; L-1417

Country: Luxembourg

Email: info@alzheimer-europe.org

Call +352 29 79 70

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Alzheimer Iberoamerica (AIB) is a non-profit institution that is an International Federation of Alzheimer's Associations and Foundations composed of full members in 21 Ibero-American countries. Made up of members representing Argentina, Bolivia, Chile, Costa Rica, El Salvador, Spain, Honduras, Ecuador, Nicaragua, Guatemala, Mexico, Dominican Republic, Peru, Puerto Rico, Uruguay, Aruba, Brazil, Colombia, Cuba, Panama, and Venezuela, Alzheimer Ibero-America (AIB) was founded to become a spokesperson and defender of the Spanish- and Portuguese-speaking Alzheimer's Associations. Thier objectives are to:

• Promote knowledge of Alzheimer's disease and other dementias.
• Serve as a liaison platform between its members.
• Unify criteria in public policies.
• Advise and support its members on issues of interest to them.
• Encourage the creation of national associations where they do not exist and the development of existing ones.
• Defend the interests and rights of its members at the Ibero-American level.
• Promote scientific and social research related to dementias.
• Develop strategies for searching for resources to solve the activities of the federation, without affecting the interests of the member institutions.
• Promote international cooperation among those organizations that have the same or similar objectives.

Organisation

Email: juntadirectiva.aib@hotmail.com

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Alzheimer's and Dementia Resource Centre empowers caregivers with the knowledge, support and programs to help them prepare for and cope with the challenges that lie ahead. They offer a variety of peer support groups, counseling sessions, educational programs and wellness events to help caregivers with the day-to-day tasks of caring for their loved ones, as well as maintaining their own health.

Organisation

Address: 1506 Lake Highland Dr. Orlando, FL 32803 USA

Country: United States of America

Email: info@adrccares.org

Call 407 843 1910

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Alzheimer's Disease International (ADI) is the global voice on dementia. We raise awareness & support Alzheimer associations & individuals worldwide.Alzheimer's Disease International (ADI) is the global voice on dementia. ADI's works by empowering Alzheimer and dementia associations to advocate for dementia as a national priority, to raise awareness and to offer care and support for people with dementia and their care partners. Globally, ADI strives to:

• Focus attention on dementia
• Maintain dementia as a global health priority
• Campaign for better policy from governments
• Encourage investment and innovation in dementia research.

10/66 Dementia Research Group

10/66 Dementia Research Group

The 10/66 Dementia Research Group is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. This group gets its name from the fact that less than 10% of all population based research into dementia is directed towards the 66% or more of all people with dementia who live in developing countries. The network is made up of over 100 researchers from more than 30 developing countries who are studying the prevalence and impact of dementia in communities where it has not been studied before. The group encourages active collaboration between research groups in different developing countries and between developed and developing countries.

Contact Person / Email
dementiaresearchgroup1066@kcl.ac.uk

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Alzheimer University

Alzheimer University

The Alzheimer University is a series of workshops for national Alzheimer association staff and volunteers to help them strengthen their associations. The aim of the Alzheimer University is to give participants the tools to identify their association’s aims, provide information, raise money and awareness, effectively govern their association and influence public policy. 

This 3-day event kicks off the Membership Development Programme each year for a number of new and developing associations. Selected representatives meet to learn and discuss the best ways to establish their association. The event typically takes place in London, near to the ADI office, providing a great opportunity for the team to meet the attendees and socialise over dinner on one of the evenings. Sessions include:

• Introduction to ADI
• Governance and the role of the Board
• Ensuring effectiveness of your association
• Raising profile and awareness
• Working with volunteers
• Public policy and campaigning, involving people living with dementia
• Providing information
• Working with the media
• Social media
• Setting up support groups
• World Alzheimer’s Month and Fundraisin

Various other Alzheimer University programmes also take place each year for member associations of various sizes and stages of development. These programmes deal with more advanced organisational issues and have a particular focus on one area, for example fundraising, advocacy or public policy.

 

Regional Alzheimer Universities

Every two years, ADI usually organises Alzheimer Universities in conjunction with regional member meetings. These sessions address the issues that our members have raised regionally and aim to provide help and guidance in dealing with some of these concerns. Participants are asked to set objectives at the end of the programme and the associations are followed up on their progress after six and twelve months. ADI financially supports invited participants to attend the Alzheimer University programmes and provides ongoing support after the course.

Address
Alzheimer's Disease International 57A Great Suffolk Street London, SE1 0BB

Country
United Kingdom

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Alzheimer's Disease International Conference

Alzheimer's Disease International Conference

Alzheimer's Disease International holds its international conference every two years. The ADI conference is one of the longest running international conferences on dementia. The conference produces fresh, innovative, and diverse content with a global network of individuals from a multitude of backgrounds. The event brings together researchers, scientists, clinicians, allied healthcare professionals, people living with dementia, family members, care professionals, and staff and volunteers of Alzheimer associations. Its multi-disciplinary approach provides a unique opportunity for delegates to listen to alternative viewpoints and mesh those with their own ways of thinking. ADI believes this crossover provides crucial learnings within the field, as together we are far more powerful than we are alone.

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Co-Designing Dementia Diagnosis And Post Diagnostic Care (COGNISANCE)

Co-Designing Dementia Diagnosis And Post Diagnostic Care (COGNISANCE)

Co-Designing Dementia Diagnosis And Post Diagnostic Care (COGNISANCE) is a 3-year project working in 5 countries. Led by Henry Brodaty in Australia, with partners in Australia, Canada, Netherlands, UK, and Poland. ADI is an external collaborator, the project’s focus is to:

• Co-design dementia diagnosis and post diagnostic care
• Develop a tool-kit to be disseminated internationally
• Develop a set of standards to guide the diagnostic and post-diagnostic process

COGNISANCE aims to improve the communication of dementia diagnosis and post-diagnostic support to co-design and deliver in partnership with people with dementia, family care partners and health care professionals, a website that provides structured information, links, resources and tools tailored to enable health care practitioners to effectively enact national dementia guidelines around diagnostic and post-diagnostic support, and to empower people with dementia and their family care partners seek the support they require. 

Contact Person / Email
m.gresham@unsw.edu.au

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CST International.

CST International.

CST International is a 3 year project will take place over three-years in four phases to develop, test, refine and disseminate implementation strategies for people living with dementia – looking to increase quality of life and cognition, and to increase awareness and skills in the detection and management of dementia.

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Dementia Intersectorial Strategy for Training and Innovation Network for Current Technology (DISTINCT)

Dementia Intersectorial Strategy for Training and Innovation Network for Current Technology (DISTINCT)

Dementia Intersectorial Strategy for Training and Innovation Network for Current Technology (DISTINCT) supports fifteen Early Stage Researchers (ESRs) across Europe, who are carrying out research projects aiming to improve the lives of people with dementia and their carers through technology. Alzheimer's Disorder International is an external collaborator on this project of nine key academic partners. The aim is to develop a multi-disciplinary, multi-professional education and training research framework for Europe aimed at improving technology and care for people with dementia and their carers. ADI offers expertise in areas of community-based practice and national policies through participating in training and education of the early stage researchers (ESRs).

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Interdisciplinary Network For Dementia Using Current Technology (INDUCT Project)

Interdisciplinary Network For Dementia Using Current Technology (INDUCT Project)

Interdisciplinary Network For Dementia Using Current Technology (INDUCT Project) is a partnership across University of Nottingham, UCL, Maastricht University, University of Amsterdam, Karolinska Institutet, Vrije Universiteit Brussel, Charles University, and IDES in Spain that aims to develop a multi-disciplinary, inter-sectorial educational research framework for Europe to improve technology and care for people with dementia, and to provide the evidence to show how technology can improve the lives of people with dementia. Alzheimer's Disease International sits on the project’s supervisory board an provides training a yearly summer school focusing on turning research into policy. ADI also provided internship opportunities for two early career researchers.

Contact Person / Email
Orii.McDermott@nottingham.ac.uk

Call +44 (0) 115 823 1258

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Strengthening Responses to Dementia in Developing Countries (STRiDE project)

Strengthening Responses to Dementia in Developing Countries (STRiDE project)

Strengthening Responses to Dementia in Developing Countries (STRiDE project) is a four-year project to build capacity in dementia research in seven developing countries, in order to support development, financing, planning, implementation and evaluation of national dementia plans. STRIDE is a partnership between the London School of Economics and Political Science (LSE) and the Alzheimer's Disease International to build research capacity, develop research evidence into what interventions work most effectively, and to better understand the impact and cost of dementia. The four-year project aims to develop evidence to support development of national dementia plans and improve quality of life for people affected by dementia. The project works across seven countries:

• Brazil
• India
• Indonesia
• Jamaica
• Kenya
• Mexico
• South Africa

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Twinning programme

Twinning programme

The Twinning programme offers a unique development opportunity for members to enable the most effective sharing of good practice. Taking part in Twinning  and focussing on a specific project helps member associations learn new skills, realise the organisation’s potential and develop valuable connections.Examples of Twinning projects including:

• Creating a newsletter
• Setting up a helpline
• Developing an online event
• Setting up a fundraising strategy
• Organising a Memory Walk.

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World Alzheimer Reports

World Alzheimer Reports

The World Alzheimer Reports are a comprehensive source of global socioeconomic information on dementia. Each World Alzheimer Report is on a different topic, so the previous reports remain important sources of information with global relevance. The reports are commissioned by ADI from a range of highly respected international researchers, universities and authors.

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World Alzheimer's Month

World Alzheimer's Month

World Alzheimer's Month is the international campaign from Alzheimer's Disease International that takes place every September. Each September, people unite from all corners of the world to raise awareness and to challenge the stigma that persists around Alzheimer’s disease and all types of dementia.   During World Alzheimer’s Month, ADI call on everyone, from individuals to large organisations, including every Alzheimer and dementia association globally, to support World Alzheimer’s Month by getting involved in some way.  
 

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Organisation

Address: 64 Great Suffolk Street London SE1 0BL

Country: United Kingdom

Email: info@alz.co.uk

Call +44 20 79810880

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The Alzheimer's Disease Sequencing Project (ADSP) is a research project aiming to identify new genomic variants contributing to increased risk of developing Late-Onset Alzheimer's Disease (LOAD), to identify new genomic variants contributing to protection against developing Alzheimer's Disease (AD), to provide insight as to why individuals with known risk factor variants escape from developing Alzheimer's Disease, and to examine these factors in multi-ethnic populations as applicable in order to identify new pathways for disease prevention

Organisation

Country: United States of America

Email: niagads@pennmedicine.upenn.edu

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The Alzheimer’s Disease Genetics Global Symposium: Pathway to Translation was a virtual conference has convened the dementia research community to discuss how discoveries in genetics impact biomarker development and target discovery and validation, and how to apply these findings in basic and translational research.

Organisation

Country: United States of America

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The Alzheimer's Association is an organisation aimed to accelerate global research, drive risk reduction and early detection, and maximize quality care and support. Through their many initiatives and worldwide reach, the Alzheimer’s Association leads the charge in Alzheimer’s care, support, research and advocacy. The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research.

Organisation

Address: 225 N. Michigan Ave. Floor 17 Chicago, IL 60601

Country: United States of America

Call +1 800-272-3900

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The Asian Cohort for Alzheimer’s Disease (ACAD) is an international collaboration with the goal of compiling a robust sample size of Asian American and Canadian subjects for Alzheimer’s disease (AD) research. Making up 6% and 10% of the US and Canadian populations respectively, Asians are the fastest growing populations in both countries yet they are underrepresented in AD research. ACAD aims to address this gap by starting with a cohort of individuals of Chinese, Korean, and Vietnamese ancestry, and later extending to other major Asian populations in both countries. Enrollment in ACAD involves a demographic questionnaire, cognitive testing, and saliva and/or blood sample for genetic analysis. These data will be used to determine the impact of lifestyle and genetic factors on AD risk.

Organisation

Country: United States of America

Email: theacadstudy@gmail.com

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Banner Alzheimer’s Institute is committed to ending Alzheimer’s before we lose another generation.  At these centers, people with Alzheimer’s/dementia and their families access a new standard of care that brings together innovative therapies, advanced treatments and valuable resources. 

Organisation

Address: 901 E Willetta St 1st Floor and 3rd Floor Phoenix, AZ 85006

Country: United States of America

Email: bhcorpsocialresponseteam@bannerhealth.com

Call (602) 839-6900

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The Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) Consortium will enroll patients with sporadic and familial forms of amyotrophic lateral sclerosis, frontotemporal dementia (FTD), primary lateral sclerosis (PLS), hereditary spastic paraplegia (HSP), and progressive muscular atrophy (PMA). The goals of the CReATe consortium are to advance therapeutic development for this group of neurodegenerative disorders through study of the relationship between clinical phenotype and underlying genotype, and also through the discovery and development of biomarkers.

Organisation

Country: United States of America

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Dementia Alliance International is a registered non-profit organisation whose membership is exclusively for people with a medically confirmed diagnosis of any type of a dementia from all around the world . They seek to represent, support, and educate others living with the disease, and the wider dementia community. We are an organization that strives to provide a unified voice of strength, advocacy and support for our rights, individual autonomy and improved quality of life. They provide online support groups and other activities for our members, free of charge in number of different time zones. 

Dementia Alliance International (DAI) is the peak organisation globally representing persons with dementia, and thus widely accepted as the global voice of dementia. They are very keen to represent ourselves in all matters concerning dementia, in the philosophy of “Nothing about us, without us.” Many persons with dementia are very capable of representing themselves, or speaking up for those who are no longer able to do so. Their work on claiming the Human Rights for all people with dementia means we are legally entitled to be included, and not just consulted, or represented by others. They are also entitled to the appropriate disability support that any other persons or groups of disabled people are afforded.

Organisation

Address: C/- Patrick with Durio & Korpal, P.C 6575 West Loop S, Ste 400 Bellaire TX 77401-3512

Country: United States of America

Email: info@infodai.org

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The Dementia Centre provides, research, consultancy and education informed by expertise in dementia to people at all levels. Their collaborations from around the globe and our results change people’s lives. Their five key focus areas include:

• Design & the environment
• Understanding behaviour
• Engagement
• Palliative care
• Models of care

As ‘international thought leaders in dementia,’ The Dementia Centre is committed to continual learning across these key areas and ensuring their work is evidence-based, current, and aligned to best practice. Currency of knowledge and advice provided by the Centre is achieved by constantly reviewing the evidence base and actively seeking the views of people with dementia. Their range of dementia services and programs:

• Provide a hub for global partnerships
• Allow for a model of constant review and renewal of initiatives in practical care settings
• Combine research, design and practical modelling
• Draw on local and international expertise
• Provide access to high-quality and tested tools
• Participate in quality research in the areas of dementia, environmental design, aged care and palliation

Organisation

Address: Level 4, 207B Pacific Highway St Leonards NSW, 2065

Country: Australia

Email: dementiacentre@hammond.com.au

Call +61 2 8437 7355

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Fingers Brain Health Institute non-profit foundation driven to advance research on healthy brain aging and the implementation of dementia prevention. Based on results from the ground-breaking FINGER (Finnish Geriatric Intervention Study to Prevent Cognitive Impairment and Disability) study, we take a novel approach to prevention, targeting the complex causes of dementia from a range of interdisciplinary perspectives. We incorporate multiple intervention strategies and tools in our solutions. We also drive towards implementing results at a rapid pace, while remaining dedicated to an effective, holistic, and global approach.

Organisation

Address: c/o Stockholms Sjukhem 102 26 Stockholm

Country: Sweden

Postal Address: Box 12230 Stockholm

Email: miia.kivipelto@fbhi.se

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Forward with Dementia™ is a collaborative program created by the University of New South Wales, the University of Sydney, the University of Wollongong (Australia), McGill University, University of New Brunswick, University of Waterloo (Canada), Maastricht University (Netherlands), Wroclaw Medical University (Poland), University College London, Newcastle University (United Kingdom), Alzheimer’s Disease International and Dementia Alliance International (Consortium). Copyright in this website and its content is owned by the Consortium and/or its members. All Rights Reserved.

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Country: Australia

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The Genome Center for Alzheimer’s Disease (GCAD) is funded to identify genetic variants that cause, influence risk, or protect against this disorder, and to identify the underlying genes affected by these variants. The role of the Genome Center for Alzheimer’s Disease (GCAD) is to coordinate the integration and meta-analysis of all available Alzheimer’s disease (AD) relevant genetic data with the goal of identifying AD risk/causative/protective genetic variants and eventual therapeutic targets. To this end, GCAD will:

• Assemble and harmonize whole-genome (WGS)/whole-exome (WES) sequencing data.
• Build ADRD specific reference panels from GCAD WGS data for GWAS imputation.
• Call structural variants from sequencing data (insertions, deletions, copy number variations) following best practices.
• Support of Functional Genomics and Cognitive Systems Analysis of Alzheimer’s Disease Genetic and Phenotype data projects.
• Facilitate analysis of GCAD genetic and functional data collection.
• Identify candidate therapeutic targets by combining and reviewing analysis results by GCAD and other ADSP/non-ADSP projects.

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Country: United States of America

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Interdem is a pan-European network of researchers collaborating in research on and dissemination of Early, Timely and Quality Psychosocial Interventions in Dementia aimed at improving the quality of life of people with dementia and their supporters, across Europe. Amongst the networks activities are the Interdem Academy which aims to promote the career development and capacity building of dementia care researchers in people with dementia, and supports the pathway to senior academic posts in the field, which is also supported by various staff members from Alzheimer Europe.

The Interdem Academy aims to enable fellowships for PhD students and postdoc researchers allowing them to spend 3-6 months in another research center and to follow courses adapted to research in dementia care. INTERDEM has various Taskforces in which committed members work together regarding a specific theme. These Taskforces are

• Assistive Technology
• Social Health
• Methodology
• Primary prevention
• Environment/ architecture
• Intercultural aspects

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Alzheimer Iberoamerica (AIB) is a non-profit institution that is an International Federation of Alzheimer's Associations and Foundations. Composed of full members in 21 Ibero-American countries, the organisation is made up of members representing Argentina, Bolivia, Chile, Costa Rica, El Salvador, Spain, Honduras, Ecuador, Nicaragua, Guatemala, Mexico, Dominican Republic, Peru, Puerto Rico, Uruguay, Aruba, Brazil, Colombia, Cuba, Panama, and Venezuela. The organisation's objectives are to:

• Promote knowledge of Alzheimer's disease and other dementias.
• Serve as a liaison platform between its members.
• Unify criteria in public policies.
• Advise and support its members on issues of interest to them.
• Encourage the creation of national associations where they do not exist and the development of existing ones.
• Defend the interests and rights of its members at the Ibero-American level.
• Promote scientific and social research related to dementias.
• Develop strategies for searching for resources to solve the activities of the federation, without affecting the interests of the member institutions.
• Promote international cooperation among those organizations that have the same or similar objectives.

Organisation

Email: juntadirectiva.aib@hotmail.com

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Positive Approach® enhances life and relationships of those living with brain change by fostering an inclusive global community. Positive Approach® to Care (PAC) provides a wide variety of services to enhance awareness and increase dementia care skills, including PAC Speakers, Trainers, Teepa Talks, and Certifications. Teepa’s life mission is to shed a positive light on dementia.

Organisation

Country: United States of America

Postal Address: PO Box 430, Efland, NC 27243-0430

Email: info@teepasnow.com

Call +1 877-877-1671

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The McKnight Brain Research Foundation is a private foundation devoted exclusively to solving the mysteries of the aging brain and helping people achieve a lifetime of cognitive health.

Organisation

Country: United States of America

Postal Address: P.O. Box 620005 Orlando, FL 32862

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The Wicking Dementia Research and Education Centre is at the forefront of translational research and support for issues confronting people with dementia and their carers. Projects are being carried out in Tasmania and nationally, across research fields such as neuroscience, medicine, nursing, psychology and sociology, health, economics and policy.  The Wicking Dementia Research and Education Centre (WDREC) is unique in Australia as an integrated dementia centre that is active across a range of disciplines, seeking to improve the lives of people with dementia and their carers. The WDREC aims to:

• Better understand the diseases affecting the brain that cause progressive decline in functioning affecting memory, problems solving skills, function and social behaviour
• Develop evidence-based models of care provision for people with dementia and their carers
• Explore the trajectory of brain and functional changes in ageing through dementia
• Provide educational programs to build knowledge and understanding of dementia within the community

Organisation

Country: Australia

Postal Address: Private Bag 143, Hobart TAS 7001

Email: wicking.enquiries@utas.edu.au

Call +61 3 6226 6914

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The World Dementia Council (WDC) is an international charity stimulating innovation and pursuing opportunities for global collaboration against dementia.. It consists of senior experts and leaders drawn from research, academia, industry, governments and NGOs in both high-income and low- and middle-income countries, including two leaders with a personal dementia diagnosis. 

Organisation

Country: United Kingdom

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The World Young Leaders in Dementia (WYLD) is a network of passionate, young professionals working across disciplines and borders to develop innovative dementia solutions. The World Young Leaders in Dementia (WYLD)’s mission is to train, connect and facilitate careers of young professionals in the field of dementia globally. We provide a platform to empower young leaders to create a better world for those living with dementia, their families and their communities. They aim to create a better world for those living with dementia, their families and their communities by:

• Bringing creative brainstorming, fresh perspectives, and novel solutions to the dementia field.
• Contributing to new dementia strategies that incorporate the latest innovations in technology and research to meet the needs of a rapidly changing world.
• Providing a platform for idea exchange and shared projects to enable a culture of collaboration among the next generation of leaders in dementia.

The World Young Leaders in Dementia (WYLD) are millennials from clinical, academic, care, advocacy and commercial backgrounds who have united to improve the lives of people with dementia across the globe. They do this by

• Supporting the work of the World Dementia Council as an associate member, contributing one young leader to each of their five Global Teams. Find out more here.
• Convening regular workshops alongside international dementia conferences to brainstorm dementia solutions across the spectrum of research, care and advocacy. 
• Working in partnership with existing dementia organisations to contribute novel perspectives and broaden the global reach of their projects.
• Delivering commissioned projects that draw on our unique network of global connections and communication channels.
• Developing a membership directory of emerging young leaders in dementia across the world to facilitate new collaborations, both within and outside of the network.

Organisation

Address: 41, rue Henri Entringer L-1467 Howald, Luxembourg R.C.S.F13167

Country: Luxembourg

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World-Wide FINGERS is a global interdisciplinary network with a mission to share knowledge and experiences on trials for dementia prevention and risk reduction, harmonize data, and plan joint international initiatives for the prevention of cognitive impairment and dementia. World-Wide FINGERS is a unique network that brings together research teams from over 40 countries around the world. The network promotes international joint initiatives and a novel approach to clinical trials in an effort to identify strategies for prevention and risk reduction of cognitive impairment, dementia, and Alzheimer’s disease. Alongside being implementable and effective in a global setting, these strategies are also tailored to different geographical, cultural, and economic settings.

Through synergistic use of data from multiple countries, World-Wide FINGERS creates a unique opportunity for rapid knowledge dissemination and implementation world-wide. The clinical trials that are currently being conducted as part of World-Wide FINGERS include common methodological features, following the core principles of the original FINGER study: 

• A focus on multidomain interventions (such as diet, exercise, cognitive training, control of vascular or metabolic risk factors, and/or social stimulation)
• Delivery of the intervention through group and individual sessions
• Tailoring of the intervention to individual needs
• Randomisation of participants so that the results of the intervention can be compared with a control group
• Prospective harmonisation of outcomes to allow for data pooling and large-scale multi-trial analysis  

Each trial is tailored to the needs of the participants in the specific country, according to local habits, resources, and other cultural factors. Our aim is to harmonize both outcomes and interventions, and to eventually have a biorepository to also harmonize the collection of, for example, fluid biomarkers.The clinical trials within the World-Wide FINGER network are currently at different stages of implementation and alignment to the original FINGER study. Each trial falls within a specific level based on its current status.

Organisation

Email: miia.kivipelto@ki.se

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