The 10/66 Dementia Research Group is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. This group gets its name from the fact that less than 10% of all population based research into dementia is directed towards the 66% or more of all people with dementia who live in developing countries. The network is made up of over 100 researchers from more than 30 developing countries who are studying the prevalence and impact of dementia in communities where it has not been studied before. The group encourages active collaboration between research groups in different developing countries and between developed and developing countries.

Contact Person / Email
dementiaresearchgroup1066@kcl.ac.uk

Visit Website

The Alzheimer University is a series of workshops for national Alzheimer association staff and volunteers to help them strengthen their associations. The aim of the Alzheimer University is to give participants the tools to identify their association’s aims, provide information, raise money and awareness, effectively govern their association and influence public policy. 

This 3-day event kicks off the Membership Development Programme each year for a number of new and developing associations. Selected representatives meet to learn and discuss the best ways to establish their association. The event typically takes place in London, near to the ADI office, providing a great opportunity for the team to meet the attendees and socialise over dinner on one of the evenings. Sessions include:

• Introduction to ADI
• Governance and the role of the Board
• Ensuring effectiveness of your association
• Raising profile and awareness
• Working with volunteers
• Public policy and campaigning, involving people living with dementia
• Providing information
• Working with the media
• Social media
• Setting up support groups
• World Alzheimer’s Month and Fundraisin

Various other Alzheimer University programmes also take place each year for member associations of various sizes and stages of development. These programmes deal with more advanced organisational issues and have a particular focus on one area, for example fundraising, advocacy or public policy.

Regional Alzheimer Universities

Every two years, ADI usually organises Alzheimer Universities in conjunction with regional member meetings. These sessions address the issues that our members have raised regionally and aim to provide help and guidance in dealing with some of these concerns. Participants are asked to set objectives at the end of the programme and the associations are followed up on their progress after six and twelve months. ADI financially supports invited participants to attend the Alzheimer University programmes and provides ongoing support after the course.

Address
Alzheimer's Disease International 57A Great Suffolk Street London, SE1 0BB

Country
United Kingdom

Visit Website

Alzheimer's Disease International holds its international conference every two years. The ADI conference is one of the longest running international conferences on dementia. The conference produces fresh, innovative, and diverse content with a global network of individuals from a multitude of backgrounds. The event brings together researchers, scientists, clinicians, allied healthcare professionals, people living with dementia, family members, care professionals, and staff and volunteers of Alzheimer associations. Its multi-disciplinary approach provides a unique opportunity for delegates to listen to alternative viewpoints and mesh those with their own ways of thinking. ADI believes this crossover provides crucial learnings within the field, as together we are far more powerful than we are alone.

Visit Website

Co-Designing Dementia Diagnosis And Post Diagnostic Care (COGNISANCE) is a 3-year project working in 5 countries. Led by Henry Brodaty in Australia, with partners in Australia, Canada, Netherlands, UK, and Poland. ADI is an external collaborator, the project’s focus is to:

• Co-design dementia diagnosis and post diagnostic care
• Develop a tool-kit to be disseminated internationally
• Develop a set of standards to guide the diagnostic and post-diagnostic process

COGNISANCE aims to improve the communication of dementia diagnosis and post-diagnostic support to co-design and deliver in partnership with people with dementia, family care partners and health care professionals, a website that provides structured information, links, resources and tools tailored to enable health care practitioners to effectively enact national dementia guidelines around diagnostic and post-diagnostic support, and to empower people with dementia and their family care partners seek the support they require. 

Contact Person / Email
m.gresham@unsw.edu.au

Visit Website

CST International is a 3 year project will take place over three-years in four phases to develop, test, refine and disseminate implementation strategies for people living with dementia – looking to increase quality of life and cognition, and to increase awareness and skills in the detection and management of dementia.

Visit Website

Dementia Intersectorial Strategy for Training and Innovation Network for Current Technology (DISTINCT) supports fifteen Early Stage Researchers (ESRs) across Europe, who are carrying out research projects aiming to improve the lives of people with dementia and their carers through technology. Alzheimer's Disorder International is an external collaborator on this project of nine key academic partners. The aim is to develop a multi-disciplinary, multi-professional education and training research framework for Europe aimed at improving technology and care for people with dementia and their carers. ADI offers expertise in areas of community-based practice and national policies through participating in training and education of the early stage researchers (ESRs).

Visit Website

Interdisciplinary Network For Dementia Using Current Technology (INDUCT Project) is a partnership across University of Nottingham, UCL, Maastricht University, University of Amsterdam, Karolinska Institutet, Vrije Universiteit Brussel, Charles University, and IDES in Spain that aims to develop a multi-disciplinary, inter-sectorial educational research framework for Europe to improve technology and care for people with dementia, and to provide the evidence to show how technology can improve the lives of people with dementia. Alzheimer's Disease International sits on the project’s supervisory board an provides training a yearly summer school focusing on turning research into policy. ADI also provided internship opportunities for two early career researchers.

Contact Person / Email
Orii.McDermott@nottingham.ac.uk

Call +44 (0) 115 823 1258

Visit Website

Strengthening Responses to Dementia in Developing Countries (STRiDE project) is a four-year project to build capacity in dementia research in seven developing countries, in order to support development, financing, planning, implementation and evaluation of national dementia plans. STRIDE is a partnership between the London School of Economics and Political Science (LSE) and the Alzheimer's Disease International to build research capacity, develop research evidence into what interventions work most effectively, and to better understand the impact and cost of dementia. The four-year project aims to develop evidence to support development of national dementia plans and improve quality of life for people affected by dementia. The project works across seven countries:

• Brazil
• India
• Indonesia
• Jamaica
• Kenya
• Mexico
• South Africa

Visit Website

The Twinning programme offers a unique development opportunity for members to enable the most effective sharing of good practice. Taking part in Twinning  and focussing on a specific project helps member associations learn new skills, realise the organisation’s potential and develop valuable connections.Examples of Twinning projects including:

• Creating a newsletter
• Setting up a helpline
• Developing an online event
• Setting up a fundraising strategy
• Organising a Memory Walk.

Visit Website

The World Alzheimer Reports are a comprehensive source of global socioeconomic information on dementia. Each World Alzheimer Report is on a different topic, so the previous reports remain important sources of information with global relevance. The reports are commissioned by ADI from a range of highly respected international researchers, universities and authors.

Visit Website

World Alzheimer's Month is the international campaign from Alzheimer's Disease International that takes place every September. Each September, people unite from all corners of the world to raise awareness and to challenge the stigma that persists around Alzheimer’s disease and all types of dementia.   During World Alzheimer’s Month, ADI call on everyone, from individuals to large organisations, including every Alzheimer and dementia association globally, to support World Alzheimer’s Month by getting involved in some way.  
 

Visit Website